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- ALS app: Register, sign up and log in
- How and why can a breathing effort be documented in the ALS app?
- How and why should a swallowing disorder be documented in the ALS app?
- How can the ALS app help with DMC treatment?
- How can the ALS app help with DMC treatment?
- How can the ALS app support the provision of aids?
- How can the ALS app support the treatment of sialorrhea?
- How can the data from the ALS app be used for research?
- How do I access the ALS app?
- How do the ALS care recommendations in the ALS app work?
- How does a fast or slow progression of the disease manifest itself?
- How does a fast or slow progression of the disease manifest itself?
- How does the medication supply via the ALS app work?
- How does the notification of a care requirement via the ALS app work?
- What are the benefits of the ALS app for patients?
- What is the ALS app?
- What is the progression value?
- What is the significance of the photo function in the ALS app?
- What is the significance of the scan function in the ALS app?
- What support can the ALS app provide in controlling body weight?
- Where can I find the ALS app?
- Who can register in the ALS app?
- Who can use the ALS app?
- Why and how should ventilation be documented in the ALS app?
- How long should the ALS function scale be collected in the ALS app?
- How often should the ALS function scale be collected in the ALS app?
- What are the benefits of the ALS Functional Scale for research?
- What are the benefits of the ALS Functional Scale from a physician's perspective?
- What are the benefits of the ALS Functional Scale from the patient's perspective?
- What does the ALS Functional Rating Scale (ALSFRS-R) mean?
- Where can I see my data from the ALS function scale?
- Are the costs of genetic diagnostics covered by health insurance?
- Can a genetic change be present even without a family history of ALS?
- Do I have the right to waive genetic information?
- How are the genetic findings communicated?
- How long does the genetic diagnosis of SOD1 take?
- Is ALS hereditary?
- Is there a genetic test for ALS?
- Under what circumstances is a genetic diagnosis useful?
- What is "familial" ALS?
- What is an ALS gene panel?
- What is genetic counseling?
- What is meant by an asymptomatic gene carrier?
- What is the ALS genetics program?
- What is the significance of genetic diagnostics in ALS?
- What risk of ALS do my children have?
- What role will genetic therapy play in ALS in the future?
- Which ALS genes should be analyzed?
- Why is the SOD1 gene of particular relevance in ALS?
- Can the ALS progression rate change during the course of ALS?
- Do I have a faster or slower progression of ALS?
- How can I find out my ALS progression rate?
- How can I use the ALS app to determine my ALS progression rate?
- What differences can there be in the ALS progression rate?
- What does ALS progression rate (progression value) mean?
- What is the significance of the ALS progression rate (ALSPR)?
- Does it make sense to take Riluzole if the disease progresses anyway?
- For which patients is treatment with Tofersen available?
- How can I tell if Riluzole is working?
- How can the ALS app help with DMC treatment?
- How can the ALS app help with DMC treatment?
- How can the ALS app support the treatment of sialorrhea?
- How can the effectiveness of DMC in ALS be recorded and documented?
- How can the effectiveness of DMC in ALS be recorded and documented?
- How is the drug DMC available?
- How should the Riluzole melting film be used?
- How should the Riluzole suspension be used?
- In which situations is treatment with cannabis useful for ALS?
- Should all patients with ALS be tested for mutations in the SOD1 gene?
- What are clinical trials?
- What are the special features of prescribing cannabis-containing medication for ALS?
- What do "Phase 1", "Phase 2" or "Phase 3" studies mean?
- What does "health services research" mean?
- What dosage forms of Riluzole are available?
- What effect does the genetic drug Tofersen have on SOD1-ALS?
- What is the mechanism of action of riluzole?
- What is your experience with Tofersen?
- What other genetic therapies for ALS are in development?
- What side effects of Riluzole are to be expected?
- What study data is available on the effect of DMC?
- What treatment options are available for ALS with speech impairment?
- When is treatment with DMC useful for ALS?
- Where can I get the latest information on new developments in genetic therapy for ALS?
- Which medications are effective for salivation in ALS?
- Which medications are used for ALS?
- What benefits does Ambulanzpartner offer for research?
- What benefits does Ambulanzpartner offer patients?
- What benefits does Ambulanzpartner offer the healthcare system?
- What does Ambulanzpartner do?
- What is the Ambulanzpartner care portal?
- What is the importance of "care management" for people with ALS?
- Are the NfL analyses in blood and cerebrospinal fluid equivalent?
- Are there fluctuations in NfL measurements in people with ALS?
- Can Neurofilament Light Chain (NfL) be used to diagnose ALS?
- Can the NfL test rule out the diagnosis of ALS?
- How is the NfL test available for people with ALS?
- How often should the NfL test be repeated in people with ALS?
- Is there a laboratory test for ALS?
- What is the significance of the biomarker troponin T in ALS?
- What is the significance of the NfL-ALS study?
- What personal benefits can the NfL value provide in ALS?
- What significance does NfL have for the prognosis of ALS?
- Where are NfL values displayed in the ALS app?
- Where are NfL values displayed in the ALS app?
- Does it make sense to add an electric drive to the folding wheelchair for ALS?
- How successful is an objection to the provision of medical aids with health insurance companies?
- What are aids?
- What is a "movement trainer"?
- What is a cervical orthosis?
- What is a head, chin or eye control?
- What is a multifunctional wheelchair?
- What is a peroneal orthosis?
- What is a positioning orthosis?
- What is a power wheelchair with special functions?
- What is a power wheelchair?
- What is a transfer aid?
- What is a trunk orthosis?
- What is an active wheelchair?
- What is an arm robot?
- What is an eating robot?
- What is an electronic communication aid?
- What is an indoor power wheelchair?
- What is an orthosis?
- What is assistance technology?
- What is environment control?
- What is the difference between a push wheelchair and an active wheelchair?
- Why can it be useful for people with ALS to use several wheelchairs?
- Can medication be administered via a PEG?
- How can Riluzole be administered via the PEG tube?
- How can the ALS Pharmacy Program support the supply of cannabis-containing medicines?
- How do ALS pharmacies contribute to research?
- How does the swallowing disorder progress in ALS?
- How many symptomatic ALS drugs are available?
- What are the special features of prescribing cannabis-containing medication for ALS?
- What does symptomatic pharmacotherapy for ALS mean?
- What is a prescription drug?
- What is an ALS pharmacy?
- What is the ALS pharmacy program?
- What is the ALS pharmacy program?
- What role does the ALS pharmacy play in DMC treatment?
- Why does it make sense to be supplied by a pharmacy specializing in ALS?
- Are there physiotherapists who specialize in ALS?
- Can motor impairments in ALS be improved by physiotherapy?
- Is there an ALS-specific physiotherapy?
- Is there an ALS-specific speech therapy?
- What are remedies?
- What assistance do occupational therapists provide in fitting assistive devices?
- What assistance do speech therapists provide when fitting aids?
- What can be expected from occupational therapy in ALS?
- What frequency and duration of occupational therapy is recommended for ALS?
- What frequency and duration of physiotherapy is recommended for ALS?
- What frequency and duration of speech therapy is recommended for ALS?
- What is heat therapy?
- What is lymphatic drainage?
- What is occupational therapy?
- What is palliative physiotherapy?
- What is speech therapy?
- What is the aim of occupational therapy for ALS?
- What is the aim of physiotherapy in ALS?
- What is the aim of speech therapy in ALS?
- What should people with ALS look out for when choosing a therapy practice?
- When is home physiotherapy necessary?
- How and where is mask ventilation fitted in ALS?
- How and why can a breathing effort be documented in the ALS app?
- How can respiratory dysfunction develop in ALS?
- How long is it possible to live with invasive ventilation in ALS?
- How often are ALS patients treated with invasive ventilation?
- What are the symptoms of respiratory dysfunction?
- What benefits can be expected from mask ventilation in ALS?
- What do vital capacity (VC), FVC or SVC mean?
- What does "cough deficiency" mean in ALS?
- What does "invasive ventilation therapy" mean in ALS?
- What does hypoventilation mean in ALS?
- What does vital capacity mean?
- What is a cough assistant?
- What is mask ventilation?
- What is the importance of a cough assistant in ALS treatment?
- What is the relevance of vital capacity?
- What treatment options are available for hypoventilation in ALS?
- Why and how should ventilation be documented in the ALS app?
- Can a nutritional drink be prescribed by a doctor?
- Can medication be administered via a PEG?
- How and why should a swallowing disorder be documented in the ALS app?
- How can Riluzole be administered via the PEG tube?
- How does weight loss occur in ALS?
- How is the energy requirement for ALS calculated?
- How often should body weight be measured?
- Is it true that a higher body weight is associated with a better prognosis for ALS?
- What adjustments need to be made to food preparation in the event of a swallowing disorder in ALS?
- What adjustments need to be made to food selection in the event of a swallowing disorder in ALS?
- What does a tube feed consist of?
- What is a "drinkable food"?
- What is a feeding pump?
- What is a PEG?
- What significance does nutrition have for the prognosis?
- What support can the ALS app provide in controlling body weight?
- Why and how should the PEG tube be documented in the ALS app?
- How does the online ALSFRS self-assessment questionnaire work?
- How does the online FRS function scale work?
- How does the SMA disease progression display work?
- What happens to my data from the FRS function scale?
- Where can I see my data from the FRS function scale?
- Why does the FRS function scale exist?
- Does PLS have a different prognosis compared to typical ALS?
- Does PMA have a different prognosis compared to typicalALS?
- How can I find out my phenotype classification?
- How is the onset of symptoms of ALS defined?
- Is PMA a "real" ALS?
- Is primary lateral sclerosis (PLS) a "real" ALS?
- What are the symptoms of the first and second motor neuron?
- What are variants and "phenotypes" of ALS?
- What does OPM classification of ALS phenotypes mean?
- What is a spastic variant of ALS?
- What is axial ALS?
- What is axial ALS?
- What is flail arm syndrome?
- What is flail arm syndrome?
- What is flail leg syndrome?
- What is meant by ALS propagation?
- What is primary lateral sclerosis (PLS)?
- What is progressive bulbar palsy?
- What is progressive muscular atrophy (PMA)?
- What significance do the phenotypes have for the prognosis of ALS?
- Where is the ALS phenotype displayed in the ALS app?
- Which phenotypes of ALS propagation can be distinguished?
- Which phenotypes of motor neuron symptoms of ALS can be distinguished?
- Which phenotypes of the site of symptom onset of ALS can be distinguished?
- Which phenotypes of the site of symptom onset of ALS can be distinguished?
- Why is the distinction between first and second motor neuron symptoms relevant in ALS?