Study on exercise trainers in ALS: intensive use and high satisfaction

People with amyotrophic lateral sclerosis (ALS) suffer progressive paralysis of the arms and legs. Therapeutic movement trainers provide aids that enable equipment-supported physiotherapy of the

Expectations of people with ALS for a robot arm

People with amyotrophic lateral sclerosis (ALS) suffer from progressive paralysis of the arms and hands. As a result, the arms and hands lose their functions and motor independence is severely

The SMA App at the Time of the Corona Pandemic: Support for Adult Patients and Doctors

The Corona pandemic demands protection from infection. These measures represent an essential change to the way people with spinal muscular atrophy (SMA) are cared for. In such scenarios, the

Successful Launch of the Observation Study on Nusinersen Applied in Adult SMA Patients

The study on Nusinersen is a nation-wide, systematic patient interview conducted with 100 patients with Spinal Muscular Atrophy (SMA) with the objective of gaining important new insights into

Note of Thanks for Data Donation for an Important Publication on the Treatment of Spasticity in ALS

The month of September 2019 saw the publication of data drawn from the APST network on the use of nabiximols in the treatment of spasticity in Amyotrophic Lateral Sclerosis (ALS). Please follow