APST ALS-Netzwerktreffen: Status of research and care for ALS in Germany, 11.05.2023

On May 11, 2023, the APST ALS Network Meeting will take place in Berlin, followed directly by the MND-Net Meeting. The APST Network Meeting and the MND-Net Meeting serve to discuss current

The NfL (neurofilament light chain) progression marker in the ALS app

Why is the biomarker NfL important for people with ALS? The value of the biomarker Neurofilament light chain (NfL) in the blood is suitable for assessing the progression and therapy of ALS. A

Current status of genetics in ALS and Tofersen: ID-ALS study and hardship program.

We would like to briefly update you on the current status (03/01/2023) of the ID-ALS02 study and the transition to the Tofersen Hardship Program After the successful completion of the first part

Care management in the home visit – a model project

Since August 2022, our supply network has been using a so-called outreach care management established for people with ALS. In the model project, patients who require complex care but receive

Scientific publication on recording the course of the disease with the ALS app

The recording of the course of the disease amyotrophic lateral sclerosis (ALS) with the help of the ALS Functional Scale (ALSFRS-R) is of great relevance for those affected themselves, the ALS