Since February 2020, about 500 people with ALS use the ALS app. Now we have improved the software and added some new features. Since a few days the ALS-App 2.0 is available for free download in
The Corona pandemic demands protection from infection. These measures represent an essential change to the way people with spinal muscular atrophy (SMA) are cared for. In such scenarios, the
The Corona pandemic demands protection from infection. These measures represent an essential change to the way people with amyotrophic lateral sclerosis (ALS) are cared for. In such scenarios,
The study on Nusinersen is a nation-wide, systematic patient interview conducted with 100 patients with Spinal Muscular Atrophy (SMA) with the objective of gaining important new insights into
Our developers have finished programming the ALS App, the first mobile App in Germany facilitating the capturing of the ALS Functional Rating Scale-revised (ALS-FRS) on your smartphones, iPhones