Care research

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Further development of the ALS app: new features and improved software

Since February 2020, about 500 people with ALS use the ALS app. Now we have improved the software and added some new features. Since a few days the ALS-App 2.0 is available for free download in

The SMA App at the Time of the Corona Pandemic: Support for Adult Patients and Doctors

The Corona pandemic demands protection from infection. These measures represent an essential change to the way people with spinal muscular atrophy (SMA) are cared for. In such scenarios, the

The ALS App at the Time of the Corona Pandemic: Support for Patients and Doctors

The Corona pandemic demands protection from infection. These measures represent an essential change to the way people with amyotrophic lateral sclerosis (ALS) are cared for. In such scenarios,

Successful Launch of the Observation Study on Nusinersen Applied in Adult SMA Patients

The study on Nusinersen is a nation-wide, systematic patient interview conducted with 100 patients with Spinal Muscular Atrophy (SMA) with the objective of gaining important new insights into

ALS App for People with ALS: Now Available for Smartphones and Tablets

Our developers have finished programming the ALS App, the first mobile App in Germany facilitating the capturing of the ALS Functional Rating Scale-revised (ALS-FRS) on your smartphones, iPhones
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