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Advantages

The ALS app - orientation, care and research for people with ALS on their smartphone

Orientation: People with ALS go through different phases of the disease at different speeds. Precise information on the individual course of the disease is displayed in the ALS app to provide orientation for those affected, their relatives and doctors. The app shows you data on the course of your ALS function scale (ALSFRS), your progress marker Nf-L and your vital signs (BMI, SVC, PCF), which are important for treatment.

Supply: The ALS app offers you the possibility to communicate your supply needs for aids and medicines online to your ALS guides. You can initiate care processes from your smartphone or tablet, mobile and from home. You can use the ALS app to send important prescriptions, documents and photos to your providers, therapists and pharmacies.

Research: You can get the latest news about ALS research, treatment and care in the app via an automatic news history. The ALS podcast is integrated into the app and offers conversations with experts about ALS. With the ALS function scale and a speech analysis function, the app offers you the opportunity to participate in scientific research projects from home.

Advantages of the ALS app at a glance

Self-assessment of my disease progression
Description of my course of disease
Display of my progress marker Nf-L
News about ALS
ALS Podcast
Chronicle of my illness
Communication of my care needs
Coordination of my care
Search for suitable providers, therapists and pharmacies
Status query on the status of my care
Scan and upload recipes, documents and photos
Participation in research
Analysis of my speech and mimic

Only the following functions are currently only available via the web portal and not in the ALS app:

View my care related documents
Contact information of my providers, therapists and pharmacies
Contact details of my specialized physicians

Registration and use

Registration with APST is required to use the ALS app. Registration and activation of the ALS app is done online or by sending the registration documents by post. The online registration process is explained here: https://www.ambulanzpartner.de/registration/

You can find the ALS app by searching in the Apple or Google App Store for the keywords "amyotrophic", "Lateral Sclerosis" or „APST" enter

With these search terms, the app can be found and downloaded free of charge.

Due to the individual and scientific benefit, we provide the ALS app free of charge. The app is connected to the Ambulanzpartner platform and uses a common database in the technical background.

To open the app, please use the login data (user name and password) from your user account on www.ambulanzpartner.de. After logging in to the app, you can use the functions on disease progression, care and research.

ALS-App

How do I find the ALS app?

The app is available on Google Play
and in the Apple App Store
available.

Functions

The ALS app offers you anytime, anywhere support in the treatment, care and research of ALS. In the app you will find bundled information about your disease course and practical features for your care. Listen to the informative ALS podcast and receive news about ALS quickly and reliably.

The functions of the app are presented to you here. Click on the function that interests you. This way you will be informed about it in a targeted manner.

ALS Functional Scale
With the ALS functional scale, the course of the disease is displayed in a comprehensible way.
Progress marker Nf-L
The nerve cell-specific protein Nf-L is displayed as a progression marker of ALS in the app.
Vital signs
Course of important vital parameters for nutrition and respiration
Progression variant
The progression of ALS can be assessed based on the variants of progression.
Care
Support and transparency in the provision of assistive devices and medications.
Scan and Photos
A scan and photo feature is designed to improve the provision of assistive devices and medications.
Chronicle
For orientation, the app offers a chronicle of the phases of the disease based on King's stages.
News and Podcast
Read and listen to news and talk from experts on ALS.
Speech and mimic analysis
Analysis of speech and facial expressions to evaluate the course of the disease