Figure: Frequency of self-assessments using the ALS Functional Scale per year. The frequency of ALSFRS self-assessments is shown between the group with answers to the ALS Functional Scale in the ALS Outpatient Clinic (Outpatient) compared to self-assessment via the portal (computer) or via the mobile app (ALS App). n: Number of patients. Source: Remote digital assessment of amyotrophic lateral sclerosis functional rating scale - a multicenter observational study. Amyotrophic Lateral Scler Frontotemporal Degenerative Disease. 2022 August
These data support the assessment that people with ALS are willing and able to answer the ALS Functional Scale via the ALS App. On this basis, clinical studies with digital recording of the ALS Functional Scale can be designed more effectively in the future. Furthermore, these data show that the ALS app is suitable for establishing a regular connection to those affected and can be used as additional support for care during the course of the disease. For this purpose, the ALS app offers the possibility to communicate care needs and to contact care coordinators directly.
About the ALS Functional Scale (ALSFRS-R):
It is an internationally established questionnaire with 12 questions on typical symptoms of ALS. For each question, 5 answer options are offered. By answering the questions, the motor symptoms and functional limitations can be systematically recorded.
About the publication:
The published scientific analysis is the most comprehensive evaluation to date on the digital recording of the ALSFRS-R and has received international attention. The results have already been presented at the European ALS Conference (ENCALS) in Edinburgh (UK) in May 2022.
About the ALS Journal:
The detailed title of the journal is: "Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration (ALS-FTDG)". This journal is dedicated to the study of motor neuron diseases, in particular ALS and frontotemporal degeneration (FTD), which occurs in part of those affected in connection with ALS. The journal (ALS-FTDG) is the official journal of the World Federation of Neurology Research Group on Motor Neuron Diseases. It promotes awareness of ALS (and FTD) and publishes on new developments in the pathogenesis and treatment of ALS and FTD.
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Link to the publication at the publisher: