The ALS app supports the first genetic therapy for ALS with mutation in the SOD1 gene.

Since March 2022, two patients have been treated with the drug Tofersen at the ALS outpatient clinic of the Charité in Berlin. The documentation and monitoring of the course of treatment are

ALS outpatient clinics in Germany standardize ALS functional rating scale: ALS app adopts uniform questionnaire

The ALS Functional Rating Scale (ALSFRSr – Amyotrophic Lateral Sclerosis Functional Rating Scale revised) is a questionnaire with 12 questions, with the help of which it is possible for

ALS Network Symposium: State of the art of ALS research in Germany, Berlin, May 19-20, 2022.

Finally, a direct coming together again. On May 19 and 20, 2022, Berlin will host the ALS-Network-Symposium live and analog. The symposium is a joint event of MND-Net (German Network for Motor

Start of the Id-ALS study: identification of genetic alterations in people with ALS

The Id-ALS study is a research program to identify genetic alterations in people with amyotrophic lateral sclerosis (ALS). The study is organized by APST. The Alfried Krupp Hospital in Essen and

Cough assistants in ALS: study demonstrates high satisfaction and daily use

For people with amyotrophic lateral sclerosis (ALS), so-called cough assistants are available to treat a weak cough. Three benefits can be achieved with a cough assistant: 1.) A physiotherapy of