Current status of genetics in ALS and Tofersen: ID-ALS study and hardship program.

We would like to briefly update you on the current status (03/01/2023) of the ID-ALS02 study and the transition to the Tofersen Hardship Program After the successful completion of the first part

Final conference research project ProDigA: Innovations in the care of complex neurological diseases, Berlin, 09.02.2023

How can care processes for people with complex neurological diseases be improved by strengthening interaction work? The BMBF project "ProDigA - Digitally Supported Interaction Work" investigated

Successful completion of the ID-ALS study Part 1: genetic testing of 1.000 people with ALS in Germany

The first part of the ID-ALS study to identify genetic alterations in people with amyotrophic lateral sclerosis (ALS) was successfully completed by Ambulanzpartner on 30.10.2022. In the study

Algorithm-based recommendations in ALS – Presentation at Neurowoche 2022

At the Neurowoche 2022 together with the congress of the German Society for Neurology (DGN) in Berlin, our first experiences with the use of algorithm-based care recommendations as decision

Scientific publication on recording the course of the disease with the ALS app

The recording of the course of the disease amyotrophic lateral sclerosis (ALS) with the help of the ALS Functional Scale (ALSFRS-R) is of great relevance for those affected themselves, the ALS