The ALS Pharmacy Program offers specialized medication management and participation in medical research for people with amyotrophic lateral sclerosis.
The SMA Pharmacy Program offers specialized drug treatment and participation in medical research for people with spinal muscular atrophy (SMA).
The ALS app can be used to track the progression of ALS. People affected can participate in research and assist the provision of their care from home.
The effectiveness of Nusinersen is being evaluated in adults with SMA as to the achievement of treatment goals, symptom progression and the patient’s satisfaction with the treatment.
People with ALS are invited to participate in a research project on digital speech and facial expression analysis via the ALS app as an alternative to self-reported outcomes.
We conduct research aimed at establishing the biomarker neurofilament light chain (NF-L) as a criterion for assessing the urgency of care for people with ALS.
The ALS care algorithm is meant to strengthen the physician-patient relationship. The algorithm has the potential to significantly improve care for people with ALS.
One body region affected
King’s Stage 1
Two body regions affected
King’s Stage 2
Three body regions affected
King’s Stage 3
Ventilation and/or feeding tube
King’s Stage 4
Case- and Network Management
Coordination, Specialization on ALS
ALS App Manager, Speech and mimic analysis
Project Management Research and Data Analysis
Medical Research
Data Management
Coordination
Network and Trial Coordination
