Your platform for care and medical research on rare neurological diseases

Our Services

APST is a digital platform for care management and medical research. We provide a care network for people with severe and rare neurological diseases.

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Care management

We facilitate the provision of appropriate medical aids, remedies, medicines and nutritional support.

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Care network

We link specialized doctors, therapists, medical supply stores and pharmacies to provide individual care solutions.

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We explore treatment realities and care outcomes through systematic data analysis.


In a changing medicine, we aim to provide programs for specialized, individualized and more precise care.

The ALS Pharmacy Program for specialized medication management

The ALS Pharmacy Program offers specialized medication management and participation in medical research for people with amyotrophic lateral sclerosis.

Care algorithm to improve the provision of care in cases of ALS.

The ALS care algorithm is meant to strengthen the physician-patient relationship. The algorithm has the potential to improve care for people with ALS.

The ALS app: research and assisting care from home.

The ALS app can be used to track the progression of ALS. People affected can participate in research and assist provision of care from home.

Nusinersen's reality of treatment for SMA.

The effectiveness of Nusinersen is being evaluated in adults with SMA as to the achievement of treatment goals, symptom progression and the patient’s satisfaction with the treatment.

Mobile speech and facial expression analysis in ALS

People with ALS are invited to participate in a research project on digital speech and facial expression analysis via the ALS app.

The SMA Pharmacy Program for specialized medication management

The SMA Pharmacy Program offers specialized drug treatment and participation in medical research for people with spinal muscular atrophy (SMA).

NF-L as a criterion for the provision of care.

We conduct research aimed at establishing the biomarker neurofilament light chain (NF-L) as a criterion for assessing the urgency of care for people with ALS.


Latest news and background information from the APST network

The ALS app supports the first genetic therapy for ALS with mutation in the SOD1 gene.

Since March 2022, two patients have been treated with the drug Tofersen at the ALS outpatient clinic of the Charité in Berlin. The documentation and monitoring of the course of treatment are supported with the ALS app. The ALS app will be ...

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ALS outpatient clinics in Germany standardize ALS functional rating scale: ALS app adopts uniform questionnaire

The ALS Functional Rating Scale (ALSFRSr - Amyotrophic Lateral Sclerosis Functional Rating Scale revised) is a questionnaire with 12 questions, with the help of which it is possible for people with amyotrophic lateral sclerosis (ALS) to record and evaluate ...

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ALS Network Symposium: State of the art of ALS research in Germany, Berlin, May 19-20, 2022.

Finally, a direct coming together again. On May 19 and 20, 2022, Berlin will host the ALS-Network-Symposium live and analog. The symposium is a joint event of MND-Net (German Network for Motor Neuron Diseases) and APST and serves to discuss current research ...

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People with ALS require individualized care depending on the course of the disease. In the course of the disease and depending on the affected body regions, the focus of care is on assessment, support or participation in life. The respective individual phase of care is recorded via the ALS Functional Scale.

People with ALS according to phases of care in the APST network

One body region affected

King’s Stage 1

Two body regions affected

King’s Stage 2

Three body regions affected

King’s Stage 3

Ventilation and/or feeding tube

King’s Stage 4


Due to the relative rarity, progressive nature and complexity of ALS, specialization and digital networking of outpatient clinics are essential. Our network of specialised ALS centres started in 2010 and has been evolving ever since. The network is a group of outpatient clinics that are interested in providing good care for their ALS patients. The network supports each other with the exchange of information, the implementation of studies and professional coordination.

active participants
Participation initiated


Service telefone

030 81031410

Montag bis Freitag von 9:00 bis 16:00 Uhr

How it works

Reviews on APST


Barbara Hildebrandt

Case- and Network Management

Anja Weiss

Coordination, Specialization on ALS

Friedrich Schaudinn

ALS App Manager, Speech and mimic analysis

Marcel Gaudlitz

Project Management Research and Data Analysis

Susanne Spittel

Medical Research

Felix Kolzarek

Data Management

Oliver Scholz


Ramona Griep

Network and Trial Coordination