Your platform for care and medical research on rare neurological diseases

Our Services

APST is a digital platform for care management and medical research. We provide a care network for people with severe and rare neurological diseases.

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Care management

We facilitate the provision of appropriate medical aids, remedies, medicines and nutritional support.

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Care network

We link specialized doctors, therapists, medical supply stores and pharmacies to provide individual care solutions.

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Research

We explore treatment realities and care outcomes through systematic data analysis.

PROGRAMS

In a changing medicine, we aim to provide programs for specialized, individualized and more precise care.

The ALS Pharmacy Program

The ALS Pharmacy Program offers specialized medication management and participation in medical research for people with amyotrophic lateral sclerosis.

The SMA Pharmacy Program

The SMA Pharmacy Program offers specialized drug treatment and participation in medical research for people with spinal muscular atrophy (SMA).

The ALS app: research and assisting care from home.

The ALS app can be used to track the progression of ALS. People affected can participate in research and assist the provision of their care from home.

Nusinersen's reality of treatment for SMA.

The effectiveness of Nusinersen is being evaluated in adults with SMA as to the achievement of treatment goals, symptom progression and the patient’s satisfaction with the treatment.

Mobile speech and facial expression analysis to assess disease progression in patients with ALS.

People with ALS are invited to participate in a research project on digital speech and facial expression analysis via the ALS app as an alternative to self-reported outcomes.

NF-L as a criterion for the provision of care.

We conduct research aimed at establishing the biomarker neurofilament light chain (NF-L) as a criterion for assessing the urgency of care for people with ALS.

Care algorithm to improve the provision of care in cases of ALS.

The ALS care algorithm is meant to strengthen the physician-patient relationship. The algorithm has the potential to significantly improve care for people with ALS.

Update

Latest news and background information from the APST network

Cough assistants in ALS: study demonstrates high satisfaction and daily use

For people with amyotrophic lateral sclerosis (ALS), so-called cough assistants are available to treat a weak cough. Three benefits can be achieved with a cough assistant:

1.) A physiotherapy of the rib muscles and ...

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Survey on the use of health data and securing privacy at APST.

The Westfälische Wilhelms-Universität Münster and the Freie Universität Berlin conduct a survey in cooperation with APST on the topic of "Use of health data and securing privacy".

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­Recognizing therapy effects in face and speech of ALS patients via the ALS app

APST is introducing digital speech and facial expression analysis via the ALS app in a model project. The analysis of speech and facial expressions in amyotrophic lateral sclerosis (ALS) is useful because the speech and facial muscles are affected during ...

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INDIVIDUALIZED CARE

People with ALS require individualized care depending on the course of the disease. In the course of the disease and depending on the affected body regions, the focus of care is on assessment, support or participation in life. The respective individual phase of care is recorded via the ALS Functional Scale.


People with ALS according to phases of care in the APST network

One body region affected

King’s Stage 1

Two body regions affected

King’s Stage 2

Three body regions affected

King’s Stage 3

Ventilation and/or feeding tube

King’s Stage 4

SPECIALIST NETWORK

Due to the relative rarity, progressive nature and complexity of ALS, specialization and digital networking of outpatient clinics are essential. Our network of specialised ALS centres started in 2010 and has been evolving ever since. The network is a group of outpatient clinics that are interested in providing good care for their ALS patients. The network supports each other with the exchange of information, the implementation of studies and professional coordination.

active participants
Participation initiated

ABOUT APST

Service telefone

030 81031410

Montag bis Freitag von 9:00 bis 16:00 Uhr

How it works

Reviews on APST

APST EXPERTS FOR CARE AND RESEARCH

Barbara Hildebrandt

Case- and Network Management

Anja Weiss

Coordination, Specialization on ALS

Friedrich Schaudinn

ALS App Manager, Speech and mimic analysis

Marcel Gaudlitz

Project Management Research and Data Analysis

Susanne Spittel

Medical Research

Felix Kolzarek

Data Management

Oliver Scholz

Coordination

Ramona Griep

Network and Trial Coordination