The ALS Pharmacy Program offers specialized medication management and participation in medical research for people with amyotrophic lateral sclerosis.
The ALS care algorithm is meant to strengthen the physician-patient relationship. The algorithm has the potential to improve care for people with ALS.
The ALS app can be used to track the progression of ALS. People affected can participate in research and assist provision of care from home.
The effectiveness of Nusinersen is being evaluated in adults with SMA as to the achievement of treatment goals, symptom progression and the patient’s satisfaction with the treatment.
People with ALS are invited to participate in a research project on digital speech and facial expression analysis via the ALS app.
The SMA Pharmacy Program offers specialized drug treatment and participation in medical research for people with spinal muscular atrophy (SMA).
We conduct research aimed at establishing the biomarker neurofilament light chain (NF-L) as a criterion for assessing the urgency of care for people with ALS.
One body region affected
King’s Stage 1
Two body regions affected
King’s Stage 2
Three body regions affected
King’s Stage 3
Ventilation and/or feeding tube
King’s Stage 4
Case- and Network Management
Coordination, Specialization on ALS
Assistive devices coordinator, outreach care management
Data Management
Medical Research
Medical Research
Coordination
Network and Trial Coordination
