Tag: Internet

Digital care during the coronavirus pandemic: communicating requirements for medical aids and medication online
Apr 7, 2020
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by
admin
in ALS, News, SMA
The reliable supply of aids and medication is crucial for people with amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. At the same time, transportation and travel restrictions during the coronavirus pandemic can make it more difficult to provide outpatient care. To ensure outpatient care, Ambulanzpartner offers patients the opportunity to document their care needs…
Patients make intensive use of the online ALSFRS questionnaire – 1,000 scores already recorded
Jul 10, 2018
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by
admin
in ALS, News
The 1,000 ALSFRS questionnaire was submitted online via Ambulanzpartner.de last weekend. We are delighted that the online self-assessment of the course of the disease is being used so intensively by patients. The 1,000 ALSFRS score was collected by Bernd König. “Your work is extremely important to me, especially in this situation,” writes Bernd König in…
Nominated for the Short List – Award for Health Networkers
Apr 5, 2018
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by
admin
in ALS, News
Ambulanzpartner has been shortlisted for this year’s award for healthcare networkers. The six-member jury whittled the 32 submissions down to 13 projects. What the shortlisted projects have in common is that they cover the entire spectrum of analog, digital and hybrid innovations for better networked healthcare. The prize for healthcare networkers is endowed with a…
International publication on the results of platform-based supply management of assistive devices for ALS
Feb 11, 2018
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by
admin
in ALS, Forschung, News
In January 2018, the international journal Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration published the results of a care management program for assistive devices in amyotrophic lateral sclerosis (ALS) via the Ambulanzpartner internet platform. The provision of assistive devices is of central importance in ALS. Despite its socio-medical relevance, the provision of assistive devices in ALS…
Federal Ministry of Education and Research underlines the importance of ambulance partner research project SmartHealthNet
Oct 17, 2017
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by
admin
in ALS, News
Today, the Federal Ministry of Education and Research (BMBF) underlines the importance of our SmartHealthNet research project with the article ‘Number of the week’ on its website and a press release. The research project started on 01.07.2017 and is funded by the BMBF. Further information: https://www.bmbf.de
What patients think: The patient perspective on physiotherapy, occupational therapy and speech therapy in ALS
Oct 17, 2017
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by
admin
in ALS, Forschung, News
Remedial care is a central component of symptomatic and palliative treatment for amyotrophic lateral sclerosis (ALS). The subjective experience of therapies including physiotherapy, occupational therapy and speech therapy is largely unknown. By surveying recommendations for physiotherapy, occupational therapy and speech therapy, Ambulanzpartner examined the patient perspective on their treatment. We surveyed 256 people with ALS…
Online recording and monitoring of the ALS-FRSr scale via ambulance partners
Sep 5, 2017
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by
admin
in ALS, Forschung, News
The “ALS Functional Rating Scale“(ALS-FRSr) is an internationally established scale for assessing ALS disease severity, which evaluates 12 motor functions (subscales) that are typically impaired in ALS. Since March 2017, we have been offering people with ALS the opportunity to document their individual ALS-FRSr scale online at regular intervals. By repeatedly answering the scale at…
Outpatient partner at the 90th Congress of the German Neurological Society 2017
May 12, 2017
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by
admin
in ALS, Forschung, News
At this year’s 90th Congress of the German Society of Neurology (DGN) from September 20 to 23 in Leipzig, we will show how outpatient partners in neurological palliative care can use “digital intelligence” to offer new and better care services for some partners. One of our highlights is the development and establishment of a care…
Premiere for patient reviews of nutritional therapists in the network
Mar 8, 2017
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by
admin
in ALS, News
In recent weeks, we have been working on the technical requirements for patient reviews of nutritional therapists (m/f) in our network. Patients can now rate nutritional therapists from whom they have received specialized nutritional care due to a swallowing disorder or unwanted weight loss. There are over 100 nutritional therapists working in the Outpatient Partner…
AP care research seal for websites of our network partners
Jan 2, 2017
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by
admin
in News
For two years now, Ambulanzpartner has been displaying various online patient reviews in anonymized form on its website. The ratings are based on the Net Promoter Score(NPS). After patients have received care, they can submit a rating in their electronic care file using the NPS. The evaluation process is complex but very binding, as only…