Category: ALS

Nominated for the Short List – Award for Health Networkers
Apr 5, 2018
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admin
in ALS, News
Ambulanzpartner has been shortlisted for this year’s award for healthcare networkers. The six-member jury whittled the 32 submissions down to 13 projects. What the shortlisted projects have in common is that they cover the entire spectrum of analog, digital and hybrid innovations for better networked healthcare. The prize for healthcare networkers is endowed with a…
High satisfaction with edaravone (Radicut) in patients with amyotrophic lateral sclerosis (ALS)
Mar 1, 2018
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admin
in ALS, Forschung, News
Edaravone is approved in Japan under the name Radicut and in the USA under the trade name Radicava for the treatment of amyotrophic lateral sclerosis (ALS). Despite the lack of approval for edaravone in Europe, the drug is also available in Germany as a single import (in accordance with Section 73 of the German Medicines…
International publication on the results of platform-based supply management of assistive devices for ALS
Feb 11, 2018
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in ALS, Forschung, News
In January 2018, the international journal Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration published the results of a care management program for assistive devices in amyotrophic lateral sclerosis (ALS) via the Ambulanzpartner internet platform. The provision of assistive devices is of central importance in ALS. Despite its socio-medical relevance, the provision of assistive devices in ALS…
Federal Ministry of Education and Research underlines the importance of ambulance partner research project SmartHealthNet
Oct 17, 2017
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admin
in ALS, News
Today, the Federal Ministry of Education and Research (BMBF) underlines the importance of our SmartHealthNet research project with the article ‘Number of the week’ on its website and a press release. The research project started on 01.07.2017 and is funded by the BMBF. Further information: https://www.bmbf.de
What patients think: The patient perspective on physiotherapy, occupational therapy and speech therapy in ALS
Oct 17, 2017
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admin
in ALS, Forschung, News
Remedial care is a central component of symptomatic and palliative treatment for amyotrophic lateral sclerosis (ALS). The subjective experience of therapies including physiotherapy, occupational therapy and speech therapy is largely unknown. By surveying recommendations for physiotherapy, occupational therapy and speech therapy, Ambulanzpartner examined the patient perspective on their treatment. We surveyed 256 people with ALS…
Online recording and monitoring of the ALS-FRSr scale via ambulance partners
Sep 5, 2017
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admin
in ALS, Forschung, News
The “ALS Functional Rating Scale“(ALS-FRSr) is an internationally established scale for assessing ALS disease severity, which evaluates 12 motor functions (subscales) that are typically impaired in ALS. Since March 2017, we have been offering people with ALS the opportunity to document their individual ALS-FRSr scale online at regular intervals. By repeatedly answering the scale at…
Outpatient partner at the 90th Congress of the German Neurological Society 2017
May 12, 2017
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in ALS, Forschung, News
At this year’s 90th Congress of the German Society of Neurology (DGN) from September 20 to 23 in Leipzig, we will show how outpatient partners in neurological palliative care can use “digital intelligence” to offer new and better care services for some partners. One of our highlights is the development and establishment of a care…
The Ambulance Partner Academy program for 2017 is ready
Mar 13, 2017
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admin
in ALS, News
In 2017, the Ambulanzpartner Akademie is once again offering exciting seminars for participants in the care network and interested guests. The thematic focus this year is clearly on amyotrophic lateral sclerosis. Since Ambulanzpartner was founded in 2011, over 6,500 people with ALS have been cared for in our network. We would like to share the…
Premiere for patient reviews of nutritional therapists in the network
Mar 8, 2017
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admin
in ALS, News
In recent weeks, we have been working on the technical requirements for patient reviews of nutritional therapists (m/f) in our network. Patients can now rate nutritional therapists from whom they have received specialized nutritional care due to a swallowing disorder or unwanted weight loss. There are over 100 nutritional therapists working in the Outpatient Partner…
Research project on care innovations for people with ALS by the Federal Ministry of Education and Research with Ambulanzpartner
Feb 3, 2017
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admin
in ALS, Forschung, News
Ambulanzpartner receives research funding from the Federal Ministry of Education and Research (BMBF) for a project on technical care support for people with amyotrophic lateral sclerosis (ALS). In the ROBINA project, five companies are researching a new type of adaptive human-technology interaction concept together with ambulance partners. The aim of the project is to transfer…