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Tag: health services research

I DONATE. My data for better care: the outpatient partner register study
Donate your data for better care with the support of the Outpatient Partner Registry Study. The Outpatient Partner Registry Study collects treatment data and patient self-assessment data in individual modules. By ‘donating’ your data to the registry study, you are helping to improve research into the care of chronic neurological diseases. The Outpatient Partner Registry…

International publication on the results of platform-based supply management of assistive devices for ALS
In January 2018, the international journal Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration published the results of a care management program for assistive devices in amyotrophic lateral sclerosis (ALS) via the Ambulanzpartner internet platform. The provision of assistive devices is of central importance in ALS. Despite its socio-medical relevance, the provision of assistive devices in ALS…

Online recording and monitoring of the ALS-FRSr scale via ambulance partners
The “ALS Functional Rating Scale“(ALS-FRSr) is an internationally established scale for assessing ALS disease severity, which evaluates 12 motor functions (subscales) that are typically impaired in ALS. Since March 2017, we have been offering people with ALS the opportunity to document their individual ALS-FRSr scale online at regular intervals. By repeatedly answering the scale at…
The ALS consultation at Halle University Hospital is a new member of the OutpatientPartner network
The special consultation for ALS at the Outpatient Clinic of the Neurological University Hospital Halle (Saale) has been a new partner in the OutpatientPartner network since November 2016. Our network currently consists of 2,300 people with amyotrophic lateral sclerosis (ALS) who are treated at the university hospitals in Berlin, Bochum, Dresden, Hanover, Magdeburg, Jena, Rostock…

AmbulanzPartner in the trade journal NeuroTransmitter
AmbulanzPartner is featured in the current issue of the specialist journal NeuroTransmitter (1/2016 supplement). NeuroTransmitter sees itself as a discussion forum and leading professional-political medium for neurologists, neurologists and psychiatrists in Germany. As the organ of three professional associations, NeuroTransmitter is a must-read for neurologists and neurologists. Our aim with this article is to provide…

Managing Aftercare for Stroke II Study: OutpatientPartner for the recording of long-term care
In the second phase of the study on post-rehabilitative disability due to stroke and patient needs (“MAS II“), AmbulanzPartner will be used to digitally record the long-term care of the study participants. MAS II is being conducted by the Charité’s Center for Stroke Research Berlin (CSB) and will begin in June 2016. The CSB wants…











