Category: SMA
All Clear: The APST Portal and the ALS and SMA apps are available again
Dear participants in the APST network, We are pleased to announce that the APST Portal, as well as the ALS app and SMA app, are once again available. After Charité – Universitätsmedizin Berlin took affected IT systems offline as a precautionary measure on October 21, 2026, due to a serious security vulnerability in PHP, the…
Temporary Unavailability of the APST Portal and the ALS and SMA Apps
Dear participants in the APST Network, We would like to inform you of a current technical issue affecting the APST Portal as well as the ALS app and SMA app. Due to a serious security vulnerability in the PHP programming language, Charité – Universitätsmedizin Berlin took its websites and affected IT systems offline this morning…
New Assistive Device Module in the APST Care Portal
On Monday, October 12, 2026, the new assistive device module is scheduled to go live on the APST Care Portal. The module has been completely redesigned. The goal of the redesign is to improve user-friendliness, simplify interaction with the supply processes, and provide a clearer overview of the current status of each assistive device process.…
15 Years of APST: First Mover Awards Honor Pioneers Who Have Shaped Care Management
On June 4, 2026, APST celebrated its 15th anniversary in Berlin. The highlight of the anniversary event was the inaugural presentation of the “APST First Mover Awards.” These awards honored medical and care partners who have supported APST from the very beginning and played a key role in shaping the platform’s development. The award recipients…
A strong team for your care management
Caring for people with ALS, SMA and other complex neurological diseases is challenging. This is why, in addition to experience and care, care management is needed that closely accompanies the care process and focuses on the individual needs of those affected. We are very pleased with the positive feedback we have received from those affected…
New nutritional support module in the APST care portal
Go live planned for 29.04.2026 The nutritional support module in the APST care portal has been completely redesigned. The aim of the new module is to map the care processes for nutritional support even better, to manage them more clearly and to make daily work in the care process easier.The new nutrition module has a…
Update of the SMA app: new functions and improved user-friendliness
New functions have been added to the SMA app and its user-friendliness has been optimized. The latest update to version 2.0.7 is now available free of charge from the Apple App Store and Google Play. The most important new features of the current version are briefly presented below. Illustration of the individual course of SMA…
Launch event for the MANAGE-SMA study in Berlin
The kick-off event for the MANAGE-SMA study will take place in Berlin on March 23 and 24, 2026. The MANAGE-SMA study is the focus of the event. Treatment experience, treatment satisfaction and motor function in adult patients with 5q-SMA will be investigated. The therapies nusinersen 12 mg, risdiplam and the higher-dose nusinersen therapy (50/28 mg)…
ALS & SMA service chat on the APST website
We are very pleased to introduce a new feature on the APST website: our ALS & SMA Service Chat. With this new chatbot, you can get quick support with questions about The ALS & SMA service chat helps you to find your way around our website even more easily, to discover suitable information more quickly…
Update of the SMA app: new functions and improved user-friendliness
We have added some new functions to the SMA app and improved its user-friendliness. The latest update of the SMA app (version 2.0.3) is available to download free of charge from the Apple App Store and Google Play. We would like to briefly introduce you to the changes in the current version. Self-assessment of the…
