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Category: ALS
Redeem your e-prescription in the ALS app at your ALS pharmacy and continue to support ALS research
You can now redeem your e-prescription with your health card via the ALS app at your specialist ALS pharmacy! You can also continue to be supplied via your ALS pharmacy with the e-prescription and take part in ALS research. Have four things ready: Electronic health card. You will find the 6-digit CAN number (“Card Access…
Patient survey on eye control glasses for people with ALS
The patient survey on eye control glasses is a nationwide, systematic survey of patients with amyotrophic lateral sclerosis (ALS). The aim of the survey is to gain important insights into expectations of the eye-control glasses as well as experiences and satisfaction following treatment with the innovative aid. Drive the wheelchair safely with eye control glasses…
The individual progression of ALS in the ALS app: the new “My progression form” function
The course of ALS (amyotrophic lateral sclerosis) can be very different and individual. The way in which the symptoms develop is described by the specific progression that is present in each affected person. Two factors are particularly important for an individual assessment of the course of the disease: To be able to better assess the course…
Digital care during the coronavirus pandemic: communicating requirements for medical aids and medication online
The reliable supply of aids and medication is crucial for people with amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. At the same time, transportation and travel restrictions during the coronavirus pandemic can make it more difficult to provide outpatient care. To ensure outpatient care, Ambulanzpartner offers patients the opportunity to document their care needs…
Bold ideas for the joint design of assistive technology provision
We would like to thank you for attending the Outpatient Partner Conference for Assistive Technology Providers on November 15, 2019. It was a very interesting conference where we developed ideas together on how we can implement better care for the patients in our network. Here are some impressions of the conference. We will keep you…
New software for the remedies module goes live
The remedies module that has been running on our internet platform since 2011 has been revised both technically and in terms of content. In terms of content, we have given the new remedies module some modified functions and new overviews. Technically, the new remedies module has been developed using responsive technology so that the content…
Pilot phase of the Ambulanzpartner care research seal completed
The pilot phase, in which the APST seal was tested on selected care partner websites, began at the start of 2017. The pilot phase showed us that the seal was stable and how often it was clicked on. Our healthcare research seal identifies companies, practices and individuals who participate in research with their patient care…
Patients make intensive use of the online ALSFRS questionnaire – 1,000 scores already recorded
The 1,000 ALSFRS questionnaire was submitted online via Ambulanzpartner.de last weekend. We are delighted that the online self-assessment of the course of the disease is being used so intensively by patients. The 1,000 ALSFRS score was collected by Bernd König. “Your work is extremely important to me, especially in this situation,” writes Bernd König in…
I DONATE. My data for better care: the outpatient partner register study
Donate your data for better care with the support of the Outpatient Partner Registry Study. The Outpatient Partner Registry Study collects treatment data and patient self-assessment data in individual modules. By ‘donating’ your data to the registry study, you are helping to improve research into the care of chronic neurological diseases. The Outpatient Partner Registry…