Category: ALS

  • Relaunch of the ALS App: Better Features and Faster Technology

    Relaunch of the ALS App: Better Features and Faster Technology

    In recent years, the ALS app has become a trusted companion for people with ALS. About 1,000 members of our network use it to track the progression of their disease, assess their prognosis, and participate in care management. With this relaunch, we’re offering faster performance and have improved several features. The latest update to the…

  • The individual progression of ALS in the ALS app: the new “My progression form” function

    The individual progression of ALS in the ALS app: the new “My progression form” function

    The course of ALS (amyotrophic lateral sclerosis) can be very different and individual. The way in which the symptoms develop is described by the specific progression that is present in each affected person. Two factors are particularly important for an individual assessment of the course of the disease: To be able to better assess the course…

  • Request an e-prescription, redeem it at your ALS pharmacy via the ALS app, and continue to support ALS research

    Request an e-prescription, redeem it at your ALS pharmacy via the ALS app, and continue to support ALS research

    The e-prescription is currently being rolled out nationwide. It will replace the “pink paper prescription.” Important: Even with the e-prescription, you can continue to receive your medications from your ALS pharmacy and participate in ALS research. There are two steps to follow. Step 1: Request a printed copy of the e-prescription You will continue to…

  • Digital care during the coronavirus pandemic: communicating requirements for medical aids and medication online

    Digital care during the coronavirus pandemic: communicating requirements for medical aids and medication online

    The reliable supply of aids and medication is crucial for people with amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. At the same time, transportation and travel restrictions during the coronavirus pandemic can make it more difficult to provide outpatient care. To ensure outpatient care, Ambulanzpartner offers patients the opportunity to document their care needs…

  • Bold ideas for the joint design of assistive technology provision

    Bold ideas for the joint design of assistive technology provision

    We would like to thank you for attending the Outpatient Partner Conference for Assistive Technology Providers on November 15, 2019. It was a very interesting conference where we developed ideas together on how we can implement better care for the patients in our network. Here are some impressions of the conference. We will keep you…

  • New software for the remedies module goes live

    New software for the remedies module goes live

    The remedies module that has been running on our internet platform since 2011 has been revised both technically and in terms of content. In terms of content, we have given the new remedies module some modified functions and new overviews. Technically, the new remedies module has been developed using responsive technology so that the content…

  • Pilot phase of the Ambulanzpartner care research seal completed

    Pilot phase of the Ambulanzpartner care research seal completed

    The pilot phase, in which the APST seal was tested on selected care partner websites, began at the start of 2017. The pilot phase showed us that the seal was stable and how often it was clicked on. Our healthcare research seal identifies companies, practices and individuals who participate in research with their patient care…

  • Patients make intensive use of the online ALSFRS questionnaire – 1,000 scores already recorded

    Patients make intensive use of the online ALSFRS questionnaire – 1,000 scores already recorded

    The 1,000 ALSFRS questionnaire was submitted online via Ambulanzpartner.de last weekend. We are delighted that the online self-assessment of the course of the disease is being used so intensively by patients. The 1,000 ALSFRS score was collected by Bernd König. “Your work is extremely important to me, especially in this situation,” writes Bernd König in…

  • I DONATE. My data for better care: the outpatient partner register study

    I DONATE. My data for better care: the outpatient partner register study

    Donate your data for better care with the support of the Outpatient Partner Registry Study. The Outpatient Partner Registry Study collects treatment data and patient self-assessment data in individual modules. By ‘donating’ your data to the registry study, you are helping to improve research into the care of chronic neurological diseases. The Outpatient Partner Registry…

  • Nominated for the Short List – Award for Health Networkers

    Nominated for the Short List – Award for Health Networkers

    Ambulanzpartner has been shortlisted for this year’s award for healthcare networkers. The six-member jury whittled the 32 submissions down to 13 projects. What the shortlisted projects have in common is that they cover the entire spectrum of analog, digital and hybrid innovations for better networked healthcare. The prize for healthcare networkers is endowed with a…