From diagnosis to treatment, any time, any place

The platform for support and research for people with ALS, SMA and other motor neuron diseases

From diagnosis to treatment, any time, any place

The platform for support and research for people with ALS, SMA and other motor neuron diseases

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How we support you

We make it easier for you to obtain suitable aids, remedies, medication and nutritional aids and connect your doctors, therapists, medical supply stores and pharmacies.

AID & REMEDY SUPPLY

We will ensure that you receive the right aid and suitable physiotherapy, occupational therapy and speech therapy.

MEDICATION SUPPLY

We offer personalized care through pharmacies that specialize in ALS and SMA therapies and participate in medical research.

NUTRITIONAL AIDS

We support people with ALS who experience unwanted weight loss or suffer from a swallowing disorder.

We are the platform for care and research in rare neurological diseases

Total number of participants with ALS since 2011

Number of participants with ALS by year (in thousands, 2018 – 2024)

20 ALS centers in the care network

ALS-APP

Find out more about our mobile application: CLICK HERE
The ALS app is available on Google Play and in the Apple App Store.

ALS-APP

Find out more about our mobile application: CLICK HERE
The ALS app is available on Google Play and in the Apple App Store.

Your contact persons

Do you have any questions? We will be happy to help you!

Katja Werdermann

Case management

Barbara Hildebrandt

Case and network management

Felix Kolzarek

Data management, support for ALS and SMA app

Dr. Senthil Subramanian

Clinical research associate

Pollen Eixab

Data management, patient services

Dr. Ronja Schiemann

Clinical research associate

Albertina Shilongo

Data management, patient services

Dr. Dr. Susanne Spittel

Medical reseach, ALS pharmacy program

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