A platform for specialized care and research

Support & research
for people with amyotrophic lateral sclerosis (as)

A platform for specialized care and research

Support & research
for people with amyotrophic lateral sclerosis (ALS)

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Total number of participants with ALS since 2011

Number of participants with ALS by year (in thousands, 2018 – 2024)

20 ALS centers in the care network

How we support you

With these care and research programs, we support you during the course of your illness.

Support

The ALS pharmacy program

Support

The DMC program

Support

The Riluzole program

Research

NfL as a criterion for supply

Research

The ALS genetics program

Research

ALS care algorithm

Support

The ALS pharmacy program

Support

The DMC program

Support

The Riluzole program

Research

NfL as a criterion for supply

Research

The ALS genetics program

Research

ALS care algorithm

not found what you are looking for?

Please contact us.

Find answers in the “Questions & Answers” section

The ALS app

The leading mobile app for ALS. Support for care and research via smartphone and tablet.

The ALS app

The leading mobile app for ALS. Support for care and research via smartphone and tablet.

We are researching this

We research treatment reality and care outcomes through systematic data analysis.

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As a participant, you will benefit from research findings on innovative therapies and care for people with ALS.

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Questions? Please contact us.

Can’t find what you’re looking for? We will be happy to help you!

Dr. Senthil Kumar Subramania

Clinical Reaseach Associate

Peggy Schumann

Medical research

Julia Schubert

Coordination, specialization in ALS

Barbara Hildebrandt

Case and network management

Dr. Dr. Susanne Spittel

Medical research

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