Year: 2026

  • Launch event for the MANAGE-SMA study in Berlin

    Launch event for the MANAGE-SMA study in Berlin

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    The kick-off event for the MANAGE-SMA study will take place in Berlin on March 23 and 24, 2026. The MANAGE-SMA study is the focus of the event. Treatment experience, treatment satisfaction and motor function in adult patients with 5q-SMA will be investigated. The therapies nusinersen 12 mg, risdiplam and the higher-dose nusinersen therapy (50/28 mg)…

  • ALS & SMA service chat on the APST website

    ALS & SMA service chat on the APST website

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    We are very pleased to introduce a new feature on the APST website: our ALS & SMA Service Chat. With this new chatbot, you can get quick support with questions about The ALS & SMA service chat helps you to find your way around our website even more easily, to discover suitable information more quickly…

  • ALS network symposium with APST in Berlin on April 16, 2026

    ALS network symposium with APST in Berlin on April 16, 2026

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    The ALS Network Symposium will take place in Berlin from Wednesday, April 15 to Friday, April 17. Traditionally, the symposium begins on Wednesday evening with an informal get-together. On Thursday, the following topics are planned by APST and Charité – Universitätsmedizin Berlin: – the ALS phenotype biomarker registry with a focus on ALS-OPM classification, NfL…

  • DMC in ALS

    DMC in ALS

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    During the course of their disease, around 90% of patients with ALS develop speech or swallowing difficulties – so-called bulbar symptoms. Around a third of all patients already show bulbar symptoms at the onset of ALS. Dextromethorphan/quinidine (DMC) has established itself as an off-label treatment option to alleviate these symptoms in ALS. In a patient…

  • Together since 2011 – 15 years of APST

    Together since 2011 – 15 years of APST

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    2026 is a special year for us: APST is celebrating its 15th anniversary. Since our founding, we have stood for reliable support, dedicated research, and digital services for people with ALS, SMA, and other motor neuron diseases. Thank you for your trust, your loyalty, and the many shared experiences over the past years. We look…