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Year: 2026
New nutritional support module in the APST care portal
Go live planned for 29.04.2026 The nutritional support module in the APST care portal has been completely redesigned. The aim of the new module is to map the care processes for nutritional support even better, to manage them more clearly and to make daily work in the care process easier.The new nutrition module has a…
The ALS pen – digital precision for ALS research
With the ALS pen, we are presenting a new project for the structured and quantifiable recording of hand motor skills in the course of amyotrophic lateral sclerosis (ALS) for the first time. Our aim is to record motor changes in the hand of people with ALS in a more differentiated and standardized way. To this…
Going live with the “ALS Center” app
We are pleased to inform you that our new “ALS Center” app will go live on 02.04.2026. The ALS Center app was developed to give doctors and staff at ALS outpatient clinics quick and clear access to the most important progress data of their ALS patients. The app displays the following information, among other things:…
Update of the SMA app: new functions and improved user-friendliness
New functions have been added to the SMA app and its user-friendliness has been optimized. The latest update to version 2.0.7 is now available free of charge from the Apple App Store and Google Play. The most important new features of the current version are briefly presented below. Illustration of the individual course of SMA…
Launch event for the MANAGE-SMA study in Berlin
The kick-off event for the MANAGE-SMA study will take place in Berlin on March 23 and 24, 2026. The MANAGE-SMA study is the focus of the event. Treatment experience, treatment satisfaction and motor function in adult patients with 5q-SMA will be investigated. The therapies nusinersen 12 mg, risdiplam and the higher-dose nusinersen therapy (50/28 mg)…
ALS & SMA service chat on the APST website
We are very pleased to introduce a new feature on the APST website: our ALS & SMA Service Chat. With this new chatbot, you can get quick support with questions about The ALS & SMA service chat helps you to find your way around our website even more easily, to discover suitable information more quickly…
ALS network symposium with APST in Berlin on April 16, 2026
The ALS Network Symposium will take place in Berlin from Wednesday, April 15 to Friday, April 17. Traditionally, the symposium begins on Wednesday evening with an informal get-together. On Thursday, the following topics are planned by APST and Charité – Universitätsmedizin Berlin: – the ALS phenotype biomarker registry with a focus on ALS-OPM classification, NfL…
DMC in ALS
During the course of their disease, around 90% of patients with ALS develop speech or swallowing difficulties – so-called bulbar symptoms. Around a third of all patients already show bulbar symptoms at the onset of ALS. Dextromethorphan/quinidine (DMC) has established itself as an off-label treatment option to alleviate these symptoms in ALS. In a patient…
Together since 2011 – 15 years of APST
2026 is a special year for us: APST is celebrating its 15th anniversary. Since our founding, we have stood for reliable support, dedicated research, and digital services for people with ALS, SMA, and other motor neuron diseases. Thank you for your trust, your loyalty, and the many shared experiences over the past years. We look…