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Tag: SMA app
A strong team for your care management
Caring for people with ALS, SMA and other complex neurological diseases is challenging. This is why, in addition to experience and care, care management is needed that closely accompanies the care process and focuses on the individual needs of those affected. We are very pleased with the positive feedback we have received from those affected…
New nutritional support module in the APST care portal
Go live planned for 29.04.2026 The nutritional support module in the APST care portal has been completely redesigned. The aim of the new module is to map the care processes for nutritional support even better, to manage them more clearly and to make daily work in the care process easier.The new nutrition module has a…
Update of the SMA app: new functions and improved user-friendliness
New functions have been added to the SMA app and its user-friendliness has been optimized. The latest update to version 2.0.7 is now available free of charge from the Apple App Store and Google Play. The most important new features of the current version are briefly presented below. Illustration of the individual course of SMA…
Launch event for the MANAGE-SMA study in Berlin
The kick-off event for the MANAGE-SMA study will take place in Berlin on March 23 and 24, 2026. The MANAGE-SMA study is the focus of the event. Treatment experience, treatment satisfaction and motor function in adult patients with 5q-SMA will be investigated. The therapies nusinersen 12 mg, risdiplam and the higher-dose nusinersen therapy (50/28 mg)…
ALS & SMA service chat on the APST website
We are very pleased to introduce a new feature on the APST website: our ALS & SMA Service Chat. With this new chatbot, you can get quick support with questions about The ALS & SMA service chat helps you to find your way around our website even more easily, to discover suitable information more quickly…
The SMA app during the coronavirus pandemic: support for adults with SMA and doctors
The corona pandemic necessitates infection control measures that are associated with a significant change in the care and treatment of people with spinal muscular atrophy (SMA). In this situation, telemedical visits between doctors and patients take on a previously unknown significance. Digital recording of SMA symptoms During a telemedical visit, the systematic communication of symptoms…