Tag: SMA app

  • Update of the SMA app: new functions and improved user-friendliness

    Update of the SMA app: new functions and improved user-friendliness

    New functions have been added to the SMA app and its user-friendliness has been optimized. The latest update to version 2.0.7 is now available free of charge from the Apple App Store and Google Play. The most important new features of the current version are briefly presented below. Illustration of the individual course of SMA…

  • Launch event for the MANAGE-SMA study in Berlin

    Launch event for the MANAGE-SMA study in Berlin

    The kick-off event for the MANAGE-SMA study will take place in Berlin on March 23 and 24, 2026. The MANAGE-SMA study is the focus of the event. Treatment experience, treatment satisfaction and motor function in adult patients with 5q-SMA will be investigated. The therapies nusinersen 12 mg, risdiplam and the higher-dose nusinersen therapy (50/28 mg)…

  • ALS & SMA service chat on the APST website

    ALS & SMA service chat on the APST website

    We are very pleased to introduce a new feature on the APST website: our ALS & SMA Service Chat. With this new chatbot, you can get quick support with questions about The ALS & SMA service chat helps you to find your way around our website even more easily, to discover suitable information more quickly…

  • The SMA app during the coronavirus pandemic: support for adults with SMA and doctors

    The SMA app during the coronavirus pandemic: support for adults with SMA and doctors

    The corona pandemic necessitates infection control measures that are associated with a significant change in the care and treatment of people with spinal muscular atrophy (SMA). In this situation, telemedical visits between doctors and patients take on a previously unknown significance. Digital recording of SMA symptoms During a telemedical visit, the systematic communication of symptoms…