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The European research consortium Joint Programs – Neurodegenerative Diseases (JPND) is using the Internet portal AmbulanzPartner.de for the ALS-CarE project. The ALS-CarE joint project aims to improve the care of patients with amyotrophic lateral sclerosis (ALS) in Europe. Institutes and clinics at the universities in Dublin, London, Milan, Leuven, Munich and Berlin are involved in…
The specialist journal “Klinische Neurophysiologie” is aimed at neurophysiologists, neurologists, neurosurgeons and neurologists in hospitals and practices. In the June 2013 issue (Clin. Neurophysiol. 2013;44:159-166), AmbulanzPartner is described in detail using the example of care for people with amyotrophic lateral sclerosis (ALS).
The trade journal “Medizin-Technische Dialog (MTDialog)” features an interview with Thomas Meyer, a founder of AmbulanzPartner (with 13 questions and answers) in its 4-2013 issue (39th year). The topic is“Networks, ambulance partners and care“.
Within the Federal Ministry of Education and Research (BMBF) network “MND-NET”, a pilot study on the feasibility of internet-based patient-reported outcomes (PRO) of disease progression, quality of life and communication options for patients with amyotrophic lateral sclerosis (ALS) in Germany (PRO-ALS01 study) is planned. The PRO-ALS01 study is being conducted nationwide at the university hospitals…
Ambulanzpartner.de is the name of a website that aims to make life easier for patients with severe neurological diseases. Social networks such as Facebook, MySpace and Xing bring millions of Internet users together every day. Doctors are now also using the principle of these communities of interest to improve outpatient care for patients with severe…