Total number of participants with SMA since 2011
245
Number of participants with SMA by year (2018 – 2024)

SMA centers in the supply network

How we support you
With these care and research programs, we support you during the course of your illness.
We are researching this
We research treatment reality and care outcomes through systematic data analysis.
I DONATE. My data for better care: the outpatient partner register study
Nominated for the Short List – Award for Health Networkers
High satisfaction with edaravone (Radicut) in patients with amyotrophic lateral sclerosis (ALS)
As a participant, you will benefit from research findings on innovative therapies and care for people with SMA.
Questions? Please contact us.
Can’t find what you’re looking for? We will be happy to help you!

Barbara Hildebrandt
Case and network management




