A platform for specialized care and research

Support & research
for people with spinal muscular atrophy (SMA)

A platform for specialized care and research

Unterstützung &

Forschung
für Menschen mit Spinaler Muskelatrophie (SMA)

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Total number of participants with SMA since 2011

245

Anzahl der Teilnehmer mit SMA nach Jahren (2019 – 2025)

SMA centers in the supply network

How we support you

With these care and research programs, we support you during the course of your illness.

Support

The SMA pharmacy program

Research

SMA supply algorithm

Research

MANAGE-SMA Studie

Support

The SMA pharmacy program

Research

SMA supply algorithm

Research

MANAGE-SMA Studie

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The SMA app

The leading mobile app at the SMA. Support for care and research via smartphone and tablet.

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The SMA app

The leading mobile app at the SMA. Support for care and research via smartphone and tablet.

read more
read more

We are researching this

We research treatment reality and care outcomes through systematic data analysis.

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As a participant, you will benefit from research findings on innovative therapies and care for people with SMA.

Learn more about research
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Questions? Please contact us.

Can’t find what you’re looking for? We will be happy to help you!

Ronja Schiemann

Dr. Ronja Schiemann

Clinical Research Associate

Felix Kolzarek

Support für SMA-App, Datenmanagement

Barbara Hildebrandt

Case and network management

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