A platform for specialized care and research

Support & research
for people with spinal muscular atrophy (SMA)

Support & research
for people with spinal muscular atrophy (SMA)

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Total number of participants with SMA since 2011

With these care and research programs, we support you during the course of your illness.

Support

The SMA pharmacy program

Research

SMA supply algorithm

Didn’t find what you are looking for?

Get in touch with us.

Find answers in the ‘Questions & Answers’ section.

Support

The SMA pharmacy program

Research

SMA supply algorithm

not found what you are looking for?

Get in touch with us.

Find answers in the ‘Questions & Answers’ section.

The leading mobile app at the SMA. Support for care and research via smartphone and tablet.

The leading mobile app for ALS. Support for care and research via smartphone and tablet.

We research treatment reality and care outcomes through systematic data analysis.

22.11.2025

As a participant, you will benefit from research findings on innovative therapies and care for people with SMA.

Can’t find what you’re looking for? We will be happy to help you!

Barbara Hildebrandt

Case and network management