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Tag: health services research
University hospitals use AmbulanzPartner in the BMBF research project ‘MND-Net’ for Germany’s largest data resource on the care of patients with ALS
In a sub-project of the German Network for Motor Neuron Diseases (MND-Net), a joint project of the Federal Ministry of Education and Research (BMBF), AmbulanzPartner is used to collect care data from patients with amyotrophic lateral sclerosis (ALS). The project is being coordinated at Charité – Universitätsmedizin Berlin and is being carried out in cooperation…
AmbulanzPartner at the 86th Congress of the German Neurological Society (DGN) in Dresden
At this year’s 86th Congress of the German Society of Neurology (DGN) on September 18, 2013 in Dresden, the German ALS Network with OutpatientPartner will be presented as a care model in the scientific program. Under the heading ‘eHealthPro – a clinical approach to record catamneses in ALS and FTD‘, the concept of the electronic…
Positive vote by the Charité ethics committee for research project with OutpatientPartner in the MND network
Within the Federal Ministry of Education and Research (BMBF) network “MND-NET”, a pilot study on the feasibility of internet-based patient-reported outcomes (PRO) of disease progression, quality of life and communication options for patients with amyotrophic lateral sclerosis (ALS) in Germany (PRO-ALS01 study) is planned. The PRO-ALS01 study is being conducted nationwide at the university hospitals…
AmbulanzPartner at the 21st Congress of the German Society for Muscular Dystrophy (DGM) in Aachen
AAmbulanzPartner will be presented at the 21st Congress of the German Society for Muscular Dystrophy (DGM) in Aachen. The AmbulanzPartner concept is presented under the heading“A web-supported service architecture in the care of complex diseases in the ALS paradigm“. The feedback from the conference visitors was positive, so that AmbulanzPartnerand DGM are planning closer cooperation.