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Tag: Amyotrophic lateral sclerosis
AmbulanzPartner analysis: High regional differences in the rejection rate of aids for ALS
AmbulanzPartner and Charité – Universitätsmedizin Berlin analyzed 1,254 patients with amyotrophic lateral sclerosis (ALS) to determine the rejection rates by health insurance companies and the regional differences in care. Between March 2011 and March 2014, 7,394 medical aids were prescribed by a specialist neurologist and recorded on the AmbulanzPartner.de internet portal. The rejection rate by…
Over 200 people take part in the internet-supported medication supply for ALS
The internet-supported medication supply for ALS has been very well received. Launched in August 2013, over 200 people with ALS are currently taking part in the module. In addition to an electronic medication plan, the nationwide medication supply in the AmbulanzPartner supply network also offers telephone advice from a specialist pharmacist and free delivery of…
European research network uses AmbulanzPartner.de to improve care for people with ALS
The European research consortium Joint Programs – Neurodegenerative Diseases (JPND) is using the Internet portal AmbulanzPartner.de for the ALS-CarE project. The ALS-CarE joint project aims to improve the care of patients with amyotrophic lateral sclerosis (ALS) in Europe. Institutes and clinics at the universities in Dublin, London, Milan, Leuven, Munich and Berlin are involved in…
University hospitals use AmbulanzPartner in the BMBF research project ‘MND-Net’ for Germany’s largest data resource on the care of patients with ALS
In a sub-project of the German Network for Motor Neuron Diseases (MND-Net), a joint project of the Federal Ministry of Education and Research (BMBF), AmbulanzPartner is used to collect care data from patients with amyotrophic lateral sclerosis (ALS). The project is being coordinated at Charité – Universitätsmedizin Berlin and is being carried out in cooperation…
Fachzeitschrift Klinische Neurophysiologie – AmbulanzPartner: multiprofessional and internet-supported care management for ALS
The specialist journal “Klinische Neurophysiologie” is aimed at neurophysiologists, neurologists, neurosurgeons and neurologists in hospitals and practices. In the June 2013 issue (Clin. Neurophysiol. 2013;44:159-166), AmbulanzPartner is described in detail using the example of care for people with amyotrophic lateral sclerosis (ALS).
Positive vote by the Charité ethics committee for research project with OutpatientPartner in the MND network
Within the Federal Ministry of Education and Research (BMBF) network “MND-NET”, a pilot study on the feasibility of internet-based patient-reported outcomes (PRO) of disease progression, quality of life and communication options for patients with amyotrophic lateral sclerosis (ALS) in Germany (PRO-ALS01 study) is planned. The PRO-ALS01 study is being conducted nationwide at the university hospitals…