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Tag: Amyotrophic lateral sclerosis
Fachzeitschrift Klinische Neurophysiologie – AmbulanzPartner: multiprofessional and internet-supported care management for ALS
The specialist journal “Klinische Neurophysiologie” is aimed at neurophysiologists, neurologists, neurosurgeons and neurologists in hospitals and practices. In the June 2013 issue (Clin. Neurophysiol. 2013;44:159-166), AmbulanzPartner is described in detail using the example of care for people with amyotrophic lateral sclerosis (ALS).
Positive vote by the Charité ethics committee for research project with OutpatientPartner in the MND network
Within the Federal Ministry of Education and Research (BMBF) network “MND-NET”, a pilot study on the feasibility of internet-based patient-reported outcomes (PRO) of disease progression, quality of life and communication options for patients with amyotrophic lateral sclerosis (ALS) in Germany (PRO-ALS01 study) is planned. The PRO-ALS01 study is being conducted nationwide at the university hospitals…