Total number of participants with SMA since 2011
245
Number of participants with SMA by year (2018 – 2024)

SMA centers in the supply network

How we support you
With these care and research programs, we support you during the course of your illness.
We are researching this
We research treatment reality and care outcomes through systematic data analysis.
New software for the remedies module goes live
Pilot phase of the Ambulanzpartner care research seal completed
Patients make intensive use of the online ALSFRS questionnaire – 1,000 scores already recorded
As a participant, you will benefit from research findings on innovative therapies and care for people with SMA.
Questions? Please contact us.
Can’t find what you’re looking for? We will be happy to help you!

Barbara Hildebrandt
Case and network management




