Total number of participants with SMA since 2011
245
Number of participants with SMA by year (2018 – 2024)
SMA centers in the supply network
How we support you
With these care and research programs, we support you during the course of your illness.
We are researching this
We research treatment reality and care outcomes through systematic data analysis.
Patient survey on eye control glasses for people with ALS
Patient survey on THC:CBD in people with ALS
The individual progression of ALS in the ALS app: the new “My progression form” function
As a participant, you will benefit from research findings on innovative therapies and care for people with SMA.
Questions? Please contact us.
Can’t find what you’re looking for? We will be happy to help you!
Barbara Hildebrandt
Case and network management