A platform for specialized care and research

Support & research
for people with spinal muscular atrophy (SMA)

A platform for specialized care and research

Support & research
for people with spinal muscular atrophy (SMA)

Register now
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Total number of participants with SMA since 2011

245

Number of participants with SMA by year (2018 – 2024)

SMA centers in the supply network

How we support you

With these care and research programs, we support you during the course of your illness.

Support

The SMA pharmacy program

Research

SMA supply algorithm

not finding what you are looking for?

Contact us.
Find answers in the “Questions & Answers” ​​section.

Support

The SMA pharmacy program

Research

SMA supply algorithm

not finding what you are looking for?

Contact us.
Find answers in the “Questions & Answers” ​​section.

The SMA app

The leading mobile app at the SMA. Support for care and research via smartphone and tablet.

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read more

The ALS app

The leading mobile app for ALS. Support for care and research via smartphone and tablet.

read more
read more

We are researching this

We research treatment reality and care outcomes through systematic data analysis.

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As a participant, you will benefit from research findings on innovative therapies and care for people with SMA.

Learn more about research
Learn more about research

Questions? Please contact us.

Can’t find what you’re looking for? We will be happy to help you!

Barbara Hildebrandt

Case and network management

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