The “ALS Functional Rating Scale“(ALS-FRSr) is an internationally established scale for assessing ALS disease severity, which evaluates 12 motor functions (subscales) that are typically impaired in ALS.
Since March 2017, we have been offering people with ALS the opportunity to document their individual ALS-FRSr scale online at regular intervals. By repeatedly answering the scale at defined intervals, an objective and dynamic picture of the course of the disease is created. The ALS-FRSr scale is completed by the patient or a relative directly in the outpatient partner account.
Monitoring the ALS-FRSr scale is useful, for example, for the treatment of ALS with the drug edaravone (trade name Radicava). A therapeutic effect of edaravone has been demonstrated for a special subgroup of ALS patients using the ALS-FRSr scale. In patients on edaravone medication, the online recording of the ALS-FRSr scale can help to record the course of treatment.