What are the benefits of the ALS app for patients?

The ALS app offers those affected digital support in dealing with ALS. It allows you to record your own ALS Functional Rating Scale (ALSFRS-R) and displays the individual course of the disease as a diagram. In addition, the ALS progression rate can be calculated in order to better assess the course of the disease. Based on this data, the ALS app provides personalized treatment recommendations for medication, nutritional products and aids, which are based on a structured care algorithm based on the results of the ALS functional scale.

To facilitate treatment, the ALS app offers direct participation in the ALS pharmacy program. Prescriptions can be requested via the platform and redeemed as an e-prescription in an ALS pharmacy. Communication is also facilitated by an integrated chat function with an ALS coordinator, so that questions can be clarified quickly and directly. To keep an eye on nutrition, the ALS app allows users to document their body weight with a graphical representation in the weight chart. In addition, those affected can communicate their need for assistive devices either as free text or by selecting them from the ALS list of assistive devices. An overview of the coordinated aids helps to maintain an overview. A scan function for medical documents and a photo function for documenting aids, nutritional products or living situations for other individual uses are available for managing important documents.

Patients participating in the NfL-ALS study receive a display of their individual ALS phenotype and their biomarker values (neurofilament light chain, NfL) in an NfL diagram.

The ALS app also provides information on the latest news from research and development and offers a direct link to the “ALS podcast”.