How reliable are the ALS care recommendations?

The ALS care recommendations are based on algorithms that are linked to the ALS app and the ALS Functional Rating Scale (ALSFRS-R) collected there. The recommendations are based on scientific findings, the clinical experience of ALS experts at Charité and other leading ALS centers in Germany, and care data from specialized ALS centers. The care recommendations are continuously scientifically evaluated and further developed. The results are presented and scientifically discussed at the annual meetings of the German Society of Neurology and at international ALS congresses. Through this exchange and ongoing research projects, the algorithms are optimized to enable even more precise and individualized care in the future.

The reliability of the recommendations results from the standardized data collection and the integration of the latest medical findings. At the same time, the evaluation of care recommendations by experienced coordinators in the outpatient partner care network and the medical assessment remain an indispensable part of the concept of care recommendations via the ALS app.

The recommendations therefore do not replace the clinical assessment, but supplement it by pointing out possible treatment options at an early stage.