The ALS pharmacy program

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The ALS pharmacy program

What does the ALS pharmacy program do?

The ALS Pharmacy Program includes individual care from pharmacies that specialize in ALS therapy and participate in medical research on ALS.

In addition to Riluzole, symptom-relieving (and rarely genetic) medication can be used. Specialization is also of particular importance in this therapy. In the outpatient partner

Since 2012, several pharmacies with special experience in the care of ALS patients (“ALS pharmacies”) have been active in the ALS care network throughout Germany. Through the existing network of ALS pharmacies, the organizational help of coordinators and the ALS app, Ambulanzpartner can make an important contribution to optimal medication treatment.

It’s so easy to take part

Teilnahme über die ALS-App

Consent to the ALS pharmacy program can be given directly via the ALS app in just a few steps. Log in to the ALS app with the access data stored for the outpatient partner account.

This is how consent works:

Open the ALS app. Tap on “More” (symbol with three dots) at the bottom right of the start page and follow steps 1-3.

Step 1: The way to consent to the ALS pharmacy program:

Click 1: Select “Consents”

Click 2: Select “ALS pharmacy program

Click 3: Continue to “fill in”

Step 2: Confirm necessary consents:

Click 4: Consent to the “delivery order”

Click 5: Consent to the “release from the duty of confidentiality”

Click 6: Consent to the “free choice of pharmacy”

Step 3: Confirm and finalize your consent.

Click 7: “Confirm” & “Agree” consent

Click 8: “Done” – Conclusion of consent

You made it!

Once you have given your consent, a pharmacy from our network specializing in ALS can contact you to coordinate further care.

Not using the ALS app yet?

The current version of the ALS app is available to download free of charge from the Apple App Store and Google Play.

Teilnahmedokumente herunterladen

Please note: It is only possible to upload participation documents if you have already registered with APST.

If you are not yet registered, please first register with Ambulanzpartner and indicate that you would like to participate in the ALS Pharmacy Program.

Declaration on the free choice of pharmacy

Download

Release from the duty of confidentiality

Download

Delivery order

Download

Are you already registered with Ambulanzpartner Versorgungnetzwerk and have you completed the documents electronically?

Upload documents

Teilnahmedokumente anfordern

Step 1

You can contact Ambulanzpartner

+49 (0) 30 81031410

or by e-mail:

apotheke@ambulanzpartner.de

Step 2

Ambulanzpartner will send you the participation documents, a registration link for the ALS app and a postage-paid envelope.

Step 3

You send your prescriptions to the ALS pharmacy via the ALS app or in a postage-paid envelope.

Step 4

The pharmacy starts the supply (consultation, delivery & documentation).

You are not registered with Ambulanzpartner?

Participate

Redeem e-prescription via the ALS app

Redeeming an e-prescription with a health card using the ALS app

Redeem e-prescription & private prescription in paper form with ALS app

Our info cards

Our specialized programs

Support

The DMC program

Support

The Riluzole program

Support

The Tofersen program

Support

The Sialorrhea Program
[Coming soon]

Support

The THC:CBD program
[available soon]

We are researching this

Patient survey on DMC in ALS

29.05.2024

Patient survey on THC:CBD in ALS

23.04.2024

Pharmacotherapy for ALS

28.05.2020

Questions? Please contact us.

Do you have questions about the ALS pharmacy program? We will be happy to help you!

Julia Schubert

Coordination and specialization in ALS

Felix Kolzarek

Data management, support for ALS and SMA app

Peggy Schumann

Medical research and Tofersen program

Dr. Dr. Susanne Spittel

Head of Research and Pharmacy Programs

Send e-mail

Call

Telephone appointment

Further information

What does an ALS pharmacy do?

Pharmacy staff with special expertise in ALS medications, especially for so-called “off-label” use (medications outside the original indication)

Decision support for the appropriate Riluzole: Riluzole film-coated tablet or melting film or suspension (depending on swallowing function & salivation)

Preparation of special prescriptions for speech disorders, unwanted laughter/crying, salivation or spastic gait disorders (if required, in consultation with the doctor)

Support in requesting prescriptions from ALS outpatient clinics or doctors’ surgeries Reminder of “running out” medication
Documentation of medication treatment on the outpatient partner portal

Data provision for ALS research

Important note: Most patients would like to keep their “traditional” local pharmacy. This request can of course be taken into account. In a typical situation, the pharmacy in the supply network will provide the special medication, while the other medication will continue to be provided by the local pharmacy.

How does the ambulance partner team provide support?

Contacting a specialized ALS pharmacy

Support with the organization of necessary prescriptions

Documentation of medical data on the ambulance partner care portal

Support with the use of the ALS app (optional)

Ambulanzpartner supports the medication treatment of patients who are being treated in an ALS outpatient clinic or in a specialist practice or by their GP. The Outpatient Partner team will be happy to help you contact us or clarify any questions you may have.

How can you use the “ALS app” for your medication treatment?

Evaluation of swallowing function and salivation using the ALS function scale (ideally once a month): Basis for optimal medication supply through early therapy (e.g. with DMC) and targeted dosage form (tablet, melt film or suspension)

Prescription request under “Care needs“

Redeem e-prescriptions with your health card or by uploading a photo

Support ALS research by consenting to the use of data

Further information

Spittel S, Grehl T, Weydt P, Kettemann D, Fabian R, Rödiger A, Smesny U, Steinbach R, Ilse B, Weyen U, Petri S, Lumi R, Bjelica B, Lingor P, Grosskreutz J, Göricke BM, Pfeilschifter W, Schmeja W, Dorst J, Mensch A, Siebert J, Norden J, Bernsen S, Subramanian SK, Hildebrandt B, Walter B, Münch C, Maier A, Meyer T. Dextromethorphan/quinidine (DMQ) for reducing bulbar symptoms in amyotrophic lateral sclerosis – assessment of treatment experience in a multicenter study. Amyotroph Lateral Scler Frontotemporal Degener. 2025 Sep 11:1-13. [Link to the publication]

Meyer T, Kettemann D, Maier A, Grehl T, Weyen U, Grosskreutz J, Steinbach R, Norden J, George A, Hermann A, Guenther R, Petri S, Schreiber-Katz O, Dorst J, Ludolph AC, Walter B, Münch C, Spittel S. Symptomatic pharmacotherapy in ALS: data analysis from a platform-based medication management program. J Neurol Neurosurg Psychiatry. 2020 Jul;91(7):783-785. [Link to the publication]

Meyer T, Funke A, Münch C, Kettemann D, Maier A, Walter B, Thomas A, Spittel S. Real world experience of patients with amyotrophic lateral sclerosis (ALS) in the treatment of spasticity using tetrahydrocannabinol:cannabidiol (THC:CBD). BMC Neurol. 2019 Sep 7;19(1):222. [Link to the publication]

The ALS pharmacy program

The ALS pharmacy program

What does the ALS pharmacy program do?

What does the ALS pharmacy program do?

It’s so easy to take part

Step 1

Step 2

Step 3

Step 4

You are not registered with Ambulanzpartner?

Redeem e-prescription via the ALS app

Our info cards

Our specialized programs

We are researching this

Questions? Please contact us.

Further information

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