Advantages
The ALS app – orientation, care, and research for people with ALS on their smartphone
Orientation: People with ALS go through different phases of the disease at different speeds. The ALS app displays precise information on the individual progression of the disease to provide orientation for those affected relatives, and doctors. The app shows you data on the progression of your ALS Functional Rating Scale (ALSFRS), your progression marker Nf-L, and your vital signs that are important for treatment (BMI, SVP, PCF).
Care: The ALS app allows you to communicate your care needs for aids and medication directly to your ALS pilots online.
You can do this easily from your smartphone or tablet, whether you’re at home or on the move. The ALS app also allows you to send important prescriptions, documents, and photos directly to your care providers, therapists, and pharmacies.
Research: The latest news on research, treatment, and care for ALS is available in the app via an automatic news feed. The ALS podcast is integrated into the app and offers conversations with experts on all aspects of ALS. With the ALS Functional Scale and a speech analysis function, the app offers you the opportunity to participate in scientific research projects from home.
How do I find the ALS app?
The app is available on Google Play and in the Apple App Store.
Advantages of the ALS app at a glance.
- ALS app Web portal
- Self-assessment of the course of my illness
- Presentation of the course of my illness
- Display of my progress marker Nf-L
- News about ALS
- ALS Podcast
- Chronicle of my illness
- Notification of my supply requirements
- Coordination of my care
- Search for suitable providers, therapists and pharmacies
- Status query on the status of my supply
- Scan and upload recipes, documents and photos
- Participation in research
- Analyzing my speech and facial expressions
Only the following functions are currently only available via the web portal and not in the ALS app:
- View my supply-related documents
- Contact details of my providers, therapists and pharmacies
- Contact details of my specialized doctors
Registration and use
Registration with APST is required to use the ALS app. Registration and activation of the ALS app can be done online or by sending the registration documents by post. The online registration process is explained here: https://www.ambulanzpartner.de/registration/
You can find the SMA app when you type “spinal muscular atrophy”, “SMA” or “SMA app” in the Apple or Google App Store.
The app can be found and downloaded for free using these search terms.
Due to the individual and scientific benefits, we provide the SMA app free of charge. The app is linked to the ambulance partner platform and uses a shared database in the technical background.
To open the app, please use the login details (username and password) from your user account at www.ambulanzpartner.de. After logging in to the app, you can use the functions on disease progression, care and research.
Functions
ALS function scale
The ALS functional scale provides a clear indication of the development of the disease.
Progression marker Nf-L
The nerve cell-specific protein Nf-L is displayed in the app as a progression marker for ALS.
VORTEILE
REGISTIERUNG
FUNKTION
Advantages
The SMA app – orientation, care, and research for adults with SMA on the smartphone
Orientation: People with SMA go through the disease in adulthood at different speeds and with different treatment options. The SMA app displays precise information on the individual course of the disease to help patients, relatives, and doctors. The app shows you data on the progression of your SMA function scale and supports you in recording important vital signs (BMI, SVC, PCF).
Care: The SMA app offers you the opportunity to communicate your supply requirements for medication and aids to your SMA pilots online.
You can initiate care processes from your smartphone or tablet on the move and from home. You can use the SMA app to send important prescriptions, documents, and photos to your care providers, therapists, and pharmacies.
Research: The latest news on research, treatment and care for ALS is available in the app via an automatic news feed. The ALS podcast is integrated into the app and offers conversations with experts on all aspects of ALS. With the ALS Functional Scale and a speech analysis function, the app offers you the opportunity to participate in scientific research projects from home.
How do I find the ALS app?
The app is available on Google Play and in the Apple App Store.
Advantages of the ALS app at a glance.
- ALS app Web portal
- Self-assessment of the course of my illness
- Presentation of the course of my illness
- Display of my progress marker Nf-L
- News about ALS
- ALS Podcast
- Chronicle of my illness
- Notification of my supply requirements
- Coordination of my care
- Search for suitable providers, therapists, and pharmacies.
- Status query on the status of my supply
- Scan and upload recipes, documents and photos
- Participation in research
- Analyzing my speech and facial expressions
Only the following functions are currently only available via the web portal and not in the ALS app:
- View my supply-related documents
- Contact details of my providers, therapists, and pharmacies
- Contact details of my specialized doctors
Registration and use
Registration with APST is required to use the ALS app. Registration and activation of the ALS app can be done online or by sending the registration documents by post. The online registration process is explained here: https://www.ambulanz partner.de/registration/
You can find the SMA app when you type “spinal muscular atrophy”, “SMA” or “SMA app” in the Apple or Google App Store.
The app can be found and downloaded for free using these search terms.
Due to the individual and scientific benefits, we provide the SMA app free of charge. The app is linked to the ambulance partner platform and uses a shared database in the technical background.
To open the app, please use the login details (username and password) from your user account at www.ambulanzpartner.de. After logging in to the app, you can use the functions on disease progression, care and research.
Functions
ALS function scale
The ALS functional scale provides a clear indication of the development of the disease.
Progression marker Nf-L
The nerve cell-specific protein Nf-L is displayed in the app as a progression marker for ALS.