Treatment with physiotherapy, occupational therapy and speech therapy are established and important forms of treatment for amyotrophic lateral sclerosis (ALS). Despite the “routine” use of these therapies, very little medical-scientific information is known about the results and subjective experiences in ALS.
So far, only three scientific publications on treatment results with physiotherapy in ALS are available. The number of patients examined in past studies is very low and amounts to less than 30 study patients. The Outpatient Clinic for ALS at Charité – Universitätsmedizin Berlin and AmbulanzPartner want to reduce this knowledge deficit with a “physiotherapy study”.
In July 2012, an evaluation of various forms of physical treatment for ALS (OR-PT-ALS01 study) was launched at Charité. An interim analysis in March 2013 revealed that more than 50 patients with ALS are already participating in the study.
In July 2012, an evaluation of various forms of physical treatment for ALS (OR-PT-ALS01 study) was launched at Charité. An interim analysis in March 2013 revealed that more than 50 patients with ALS are already participating in the study.
The study procedure consists of patients being invited to complete a specific questionnaire on AmbulanzPartner.de at one-month intervals. During the study, the type, scope and frequency of the prescribed therapy are recorded and correlated with the information from the questionnaire.
Participation in this study is of great importance in order to be able to make more targeted recommendations on the method, frequency and duration of therapy in the coming months and years. Direct patient feedback plays a decisive role in this.
The involvement of the patient in the assessment of treatment outcomes (“patient-reported outcomes”; PRO) is a positive development in modern medicine, which is referred to as “goal-oriented” or “patient-centered” medicine.
Participation in this study is of great importance in order to be able to make more targeted recommendations on the method, frequency and duration of therapy in the coming months and years. Direct patient feedback plays a decisive role in this.
The involvement of the patient in the assessment of treatment outcomes (“patient-reported outcomes”; PRO) is a positive development in modern medicine, which is referred to as “goal-oriented” or “patient-centered” medicine.