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Advantages
The SMA app – orientation, care and research for adults with SMA on the smartphone
Orientation: People with SMA go through a disease in adulthood at different speeds and with different treatment options. The SMA app displays precise information on the individual course of the disease to help patients, relatives and doctors. The app shows you data on the progression of your SMA function scale and supports you in recording important vital signs (BMI, SVC, PCF).
Supply: The SMA app offers you the opportunity to communicate your supply requirements for medication and aids to your SMA pilots online. You can initiate care processes from your smartphone or tablet on the move and from home. You can use the SMA app to send important prescriptions, documents and photos to your care providers, therapists and pharmacies.
Research: With the SMA function scale, the app offers you the opportunity to participate in scientific research projects from home.
Advantages of the ALS app at a glance.
- SMA app Web portal
- Self-assessment of the course of my illness
- Presentation of the course of my illness
- Recording my vital signs
- Notification of my supply requirements
- Status query on the status of my supply
- Scan and upload recipes, documents and photos
- Participation in research
Only the following functions are currently only available via the web portal and not in the SMA app:
- View my supply-related documents
- Contact details of my providers, therapists and pharmacies
- Coordination of my care
- Contact details of my specialized doctors
Registration and use
Registration with Ambulanzpartner is required to use the SMA app. Registration and activation of the SMA app can be done online or by sending the registration documents by post. The online registration process is explained here: https://www.ambulanzpartner.de/sma/registration/
You can find the SMA app by entering the search terms “spinal muscular atrophy”, “SMA” or “SMA app” in the Apple or Google App Store.
The app can be found and downloaded free of charge using these search terms.
Due to the individual and scientific benefits, we provide the SMA app free of charge. The app is linked to the ambulance partner platform and uses a shared database in the technical background.
To open the app, please use the login details (user name and password) from your user account at www.ambulanzpartner.de. After logging in to the app, you can use the functions on disease progression, care and research.
Functions
The SMA app offers you support for the treatment, care and research of SMA anytime and anywhere. In the app you will find bundled information on the course of your disease and practical features for your care. The functions of the app are presented here. Click on the function that interests you. You will then be specifically informed about it.
FRS function scale
The FRS functional scale provides a clear indication of the development of the disease.
ADVANTAGES
REGISTRATION
FUNCTION
Advantages
The SMA app – orientation, care and research for adults with SMA on the smartphone
Orientation: People with SMA go through a disease in adulthood at different speeds and with different treatment options. The SMA app displays precise information on the individual course of the disease to help patients, relatives and doctors. The app shows you data on the progression of your SMA function scale and supports you in recording important vital signs (BMI, SVC, PCF).
Supply: The SMA app offers you the opportunity to communicate your supply requirements for medication and aids to your SMA pilots online. You can initiate care processes from your smartphone or tablet on the move and from home. You can use the SMA app to send important prescriptions, documents and photos to your care providers, therapists and pharmacies.
Research: With the SMA function scale, the app offers you the opportunity to participate in scientific research projects from home.
Advantages of the SMA app at a glance.
- SMA app Web portal
- Self-assessment of the course of my illness
- Presentation of the course of my illness
- Recording my vital signs
- Notification of my supply requirements
- Status query on the status of my supply
- Scan and upload recipes, documents and photos
- Participation in research
Only the following functions are currently only available via the web portal and not in the SMA app:
- View my supply-related documents
- Contact details of my providers, therapists and pharmacies
- Coordination of my care
- Contact details of my specialized doctors
Registration and use
Registration with Ambulanzpartner is required to use the SMA app. Registration and activation of the SMA app can be done online or by sending the registration documents by post. The online registration process is explained here: https://www.ambulanz partner.de/sma/registration/
You can find the SMA app by entering the search terms “spinal muscular atrophy”, “SMA” or “SMA app” in the Apple or Google App Store.
The app can be found and downloaded free of charge using these search terms.
Due to the individual and scientific benefits, we provide the SMA app free of charge. The app is linked to the ambulance partner platform and uses a shared database in the technical background.
To open the app, please use the login details (user name and password) from your user account at www.ambulanzpartner.de. After logging in to the app, you can use the functions on disease progression, care and research.
Functions
The SMA app offers you support for the treatment, care and research of SMA anytime and anywhere. In the app you will find bundled information on the course of your disease and practical features for your care. The functions of the app are presented here. Click on the function that interests you. You will then be specifically informed about it.
FRS function scale
ALS functional scale
The ALS functional scale shows the development of the disease in an understandable way.