Year: 2024

  • Patient survey on eye control glasses for people with ALS

    Patient survey on eye control glasses for people with ALS

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    The patient survey on eye control glasses is a nationwide, systematic survey of patients with amyotrophic lateral sclerosis (ALS). The aim of the survey is to gain important insights into expectations of the eye-control glasses as well as experiences and satisfaction following treatment with the innovative aid. Drive the wheelchair safely with eye control glasses…

  • ALS Pharmacy Program Expands Its Network in Germany

    ALS Pharmacy Program Expands Its Network in Germany

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    The ALS Pharmacy Program is being further expanded with the addition of two new specialized pharmacies in Hanover and Quickborn. This development offers patients in these regions of Germany the opportunity to benefit from specialized care close to home. As a next step, the network of “ALS Pharmacies” is currently being expanded in southern Germany,…

  • Patient Survey on DMC in People with ALS

    Patient Survey on DMC in People with ALS

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    The DMC Patient Survey is a survey of patients with amyotrophic lateral sclerosis (ALS) that gathers important insights into their satisfaction with the DMC medication used to treat speech and swallowing difficulties. DMC Care for ALS Dextromethorphan/quinidine (DMC) is a medication used to treat speech and swallowing difficulties in patients with amyotrophic lateral sclerosis, with…

  • Patient Survey on PEG in People with ALS

    Patient Survey on PEG in People with ALS

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    The patient survey is a nationwide, systematic survey of 200 patients with amyotrophic lateral sclerosis (ALS), designed to gather important insights into patient satisfaction with percutaneous endoscopic gastrostomy (PEG) and medication administration via a PEG tube.Medication Administration via PEG­Pharmacotherapy for ALS is particularly complex when the disease is accompanied by progressive and severe swallowing difficulties…

  • Patient survey on THC:CBD in people with ALS

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    The THC:CBD patient survey is a systematic survey of 130 patients with amyotrophic lateral sclerosis (ALS), in which important findings on experience and satisfaction with treatment with cannabis-containing medicines containing tetrahydrocannabinol (THC) and cannabidiol (CBD) are obtained. Cannabis-containing treatment for ALS Medicines containing cannabis are used for severe illnesses when conventional medicines are not sufficiently…

  • Relaunch of the ALS App: Better Features and Faster Technology

    Relaunch of the ALS App: Better Features and Faster Technology

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    In recent years, the ALS app has become a trusted companion for people with ALS. About 1,000 members of our network use it to track the progression of their disease, assess their prognosis, and participate in care management. With this relaunch, we’re offering faster performance and have improved several features. The latest update to the…

  • The individual progression of ALS in the ALS app: the new “My progression form” function

    The individual progression of ALS in the ALS app: the new “My progression form” function

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    The course of ALS (amyotrophic lateral sclerosis) can be very different and individual. The way in which the symptoms develop is described by the specific progression that is present in each affected person. Two factors are particularly important for an individual assessment of the course of the disease: To be able to better assess the course…

  • Request an e-prescription, redeem it at your ALS pharmacy via the ALS app, and continue to support ALS research

    Request an e-prescription, redeem it at your ALS pharmacy via the ALS app, and continue to support ALS research

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    The e-prescription is currently being rolled out nationwide. It will replace the “pink paper prescription.” Important: Even with the e-prescription, you can continue to receive your medications from your ALS pharmacy and participate in ALS research. There are two steps to follow. Step 1: Request a printed copy of the e-prescription You will continue to…