ALS-App: provision of assistive technology devices and medicines despite pandemic measures

The ongoing pandemic situation and the measures associated with it also make outpatient care more difficult. The ALS app offers people with ALS the possibility to communicate online the need for

High Patient Safety against Corona Virus in the Care Network

In order to prevent transmission of the corona virus and disease from Covid-19, it is useful to develop and implement prevention concepts in all areas of care. This is especially true for the

Digital Care at the Time of the Corona Pandemic: Advise of Your Need for Assistive Technology Devices (ATD) and Medication Online

To people with Amyotrophic Lateral Sclerosis (ALS) and other neuromuscular diseases, reliability in the provision of assistive technology devices and medication is crucial. The aggravated

The ALS App at the Time of the Corona Pandemic: Support for Patients and Doctors

The Corona pandemic demands protection from infection. These measures represent an essential change to the way people with amyotrophic lateral sclerosis (ALS) are cared for. In such scenarios,

Successful Launch of the Observation Study on Nusinersen Applied in Adult SMA Patients

The study on Nusinersen is a nation-wide, systematic patient interview conducted with 100 patients with Spinal Muscular Atrophy (SMA) with the objective of gaining important new insights into