On December 4, 2025, the ALS app will be presented at the“ALS App Europe Initiative Meeting” at the International Symposium on ALS/MND in San Diego (USA). The meeting brings together European and American ALS centers, researchers and patient initiatives.
You can find out more about the program here: https://symposium.mndassociation.org/programme/satellite-meetings/
The “ALS App Europe Initiative” meeting will focus on the motor phenotypes of ALS and the OPM classification as a basis for international harmonization. In addition, attitudes towards phenotyping and NfL testing will be discussed – in each case with a special focus on the use of this data via the ALS app.
A central program module is the demonstration of the ALS app. The country-specific functions and the registration process for patients will be presented. This will show how the app can be adapted to different care structures in Europe and integrated into daily clinical practice.
Another focus will be on the collection of the ALSFRS-R (ALS Functional Rating Scale – Revised) in routine care: The program will discuss both the current practice of self-reporting the ALSFRS-R in European centers and a revised, self-explanatory version for smartphone-based self-assessment. The ALS app serves as a digital platform for recording progress measurements in a standardized, location-independent and patient-oriented manner.
With the presentation of the ALS app at the “ALS App Europe Initiative” meeting, a further step is being taken towards a Europe-wide networked, digital ecosystem for people with ALS . The aim is to efficiently pool clinical data, biomarkers and progression information – and thus provide sustainable support for care and research.