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People with ALS go through different phases of the disease. The ALS app offers a chronicle of the course of the disease to help those affected and their relatives. In the chronicle, the phases of ALS are divided into phases 1 to 4 based on King’s staging (developed at King’s College in London) and displayed. Users have the opportunity to find out about suitable support services in the phases. The individual King’s phase is determined by the values in the ALS functional scale (ALSFRS questionnaire). An exemplary description of King’s Phase 1 in the ALS app:
After being diagnosed with ALS, those affected and their relatives often enter a phase of searching for orientation. Services for assessing the disease and finding out about treatment and support options can help in this phase. These services are designed to help them develop a perspective for the future.
King’s Phase 1 contains links to various offers for the individual information needs of patients and their relatives. These include the program for the analysis of the biomarker Nf-L as a progression marker of ALS, a study to identify genetic changes (genetics of ALS) and an overview of current drug studies. Relatives may find the link to a network for relatives helpful. Contact with other relatives offers guidance in the new everyday life with the disease.
Chronicle of ALS
You will find a chronology on the progression page. The chronology shows the dates of the onset of the disease, the diagnosis and the four phases of ALS in chronological order.
Disease phase King’s phase 1
The chronicle offers a brief description of the disease phases 1 to 4, here using the example of King’s Phase 1.
Offer for the phases of the disease
In the phases of the disease (King’s phases 1 to 4), suitable support services are suggested for those affected and their relatives.