As part of a research project, Ambulanzpartner has developed a care algorithm for people with spinal muscular atrophy (SMA). The care algorithm provides care recommendations for compensating for motor impairments with aids. These recommendations are based on the digital analysis of patterns in the functional scale (ALSFRS-ex, ALS Functional Rating Scale extended), which is collected by patients themselves, in the sense of a “self-assessment”. 

The care algorithm receives the data from the functional scale. The data analysis then leads to a care recommendation (e.g., need for care with a mobility aid). 

The care recommendation is evaluated by coordinators from outpatient partners, discussed with the patient through contact, and agreed with the treating specialists (especially at SMA outpatient clinics). The algorithm-based care recommendation is ultimately intended to support doctors’ decision-making in the SMA outpatient clinics. 

The current care algorithm provides care recommendations for aids for mobility and communication impairments and medication for symptomatic treatment. The overarching goal is to use care algorithms – in addition to the existing care structures – to enable people with SMA to be treated even faster and in a more needs-based manner.