Since February 2020, approximately 500 people with ALS use the ALS app. The ALS app provides mobile support for research and care and is useful for:
affected people: By answering the functional scales via the app, people with amyotrophic lateral sclerosis (ALS) can assess the current progression of the disease and their individual disease course (rate of progression).
treating physicians: The self-assessments made by the patient via the app can also be viewed by the physician. This allows the treatment team to gain insight into the individual course of the disease during rounds and between appointments.
research: The data from the functional scale are of great importance for therapy research into future medications. Each self-assessment with the app improves the statistical power of the ALS Functional Rating Scale (ALSFRSr scale - Amyotrophic Lateral Sclerosis Functional Rating Scale revised), which is the efficacy criterion ("clinical endpoint") of clinical trials and the central approval criterion for new drugs. Furthermore, we are researching how the ALSFRSr scale can be used to accurately identify care needs - for example, with mobility, communication or respiratory aids - at an early stage.